The hospital Dr Schwartzman would have mentioned to you is San Jose, Monterrey, Mexico. The doctor there who manages the process there is called Dr Cantu. The coma isn't done in any other country because of the fatal and near fatal outcomes that have resulted. This is why I stressed the critical need for you to research the whole thing incredibly thoroughly. In addition, you would have to raise the money yourself for the treatment and the hospital stay because it won't be covered by any US insurer. I don't know how the charging works if there are complications and patients need to stay in ICU or the hospital longer than the anticipated 5-7 days.

If I were in your shoes, I think I would be questioning the professionalism of this particular doctor's whole set up given the problems that seem to have resulted in relation to something as simple as 3 prescriptions and what is in a set of patient notes. These are incredibly basic drugs and any bog-standard pain management doctor could/would have prescribed them if faced with a case of CRPS. You don't need to wait 3 years for a CRPS expert for these prescriptions!

If your daughter is only just being prescribed these basic medications now, what has she been prescribed previously? Your post doesn't have much information about her previous history so its hard to know what she has already tried. I fully appreciate you may not want to share more information but I will ask and you can decide how much you want to share.

Why was her treatment at CHOP deemed to be so barbaric? Was she on an inpatient programme with intensive physio perhaps? I know that it's not a popular opinion but the latest research being done in multi centre trials in Europe is demonstrating that intensive physio regimes, in spite of increasing pain in the short term, are yielding good pain and functional outcomes for patients. It's also recognised that in children, adolescents and young people, this kind of " tough love" approach often yields good results.

Anyway, if there is more you want to share, I'm sure people will try to help with as much information as they can.

It is my understanding that Dr. Cantu is no longer performing the k comas in Mexico, both Germany and Mexico have been shut down. The last k coma was actually performed in the US.

dr. sherry runs the CHOP program, his program is noted as one of the best in te country for children and young adults.

I am going to send you a PM with more info. Sandy

I didn't think the coma treatment was still being done in Mexico. However, since this lady had posted saying that Dr Schwartzman (who is one of its biggest supporters) had only very recently recommended the lady's daughter have it done, I assumed I must have been wrong. It seems totally bizarre if he did actually recommend a procedure to someone if it is no longer being done anywhere. It wouldn't inspire confidence.

No it wouldn't, would it.

Dr. S. is retiring. Dr. Aradillas is taking many of his patients.

Perhaps it's a good thing - sometimes patients are ultimately better served by someone new coming in who has the benefit of working alongside an experienced specialist but can also bring their own fresh ideas. Here's hoping anyway...