Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-17-2012, 03:04 PM #1
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Thumbs up RSD Humor... If there is such a thing.

Nonetheless.....

So I’m blow drying my hair and my foot is like ice, so I think hell yeah, I point dryer directly at my foot. It helped. I’m standing there thinking... so it’s come to this.

I know (or at least I think I know) that most of you have more of a hot RSD, with way more swelling and heat and such, but i have a cold RSD. My feet and my hands get so darn cold it’s ridiculous! So I gave the ridiculous notion of hair dryer to foot a try today.
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Old 12-17-2012, 03:10 PM #2
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I have had both hot and cold. The longer I have rsd, the colder my foot seems to become. I can totally relate to you using the hair dryer to warm your extremities. lol.
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Old 12-17-2012, 03:37 PM #3
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Quote:
Originally Posted by Vrae View Post
Nonetheless.....

So I’m blow drying my hair and my foot is like ice, so I think hell yeah, I point dryer directly at my foot. It helped. I’m standing there thinking... so it’s come to this.

I know (or at least I think I know) that most of you have more of a hot RSD, with way more swelling and heat and such, but i have a cold RSD. My feet and my hands get so darn cold it’s ridiculous! So I gave the ridiculous notion of hair dryer to foot a try today.

I have the same problem but with my left arm. I can't feel the cold though...
And hey at least you went with the hair dryer ans not the curling iron!!! lol They do say "it's enough to curl you toes" lololol.....I am in immense pain right now I bet I would be cracking joke on my deathbed
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Old 12-17-2012, 07:19 PM #4
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Isn't it weird the skin "temp" issues we have with CRPS?

I started with both cold and hot issues, but over time I now just have "hot" CRPS. The cold has gone away.......probably best as I live in Minnesota, where I get enough cold every time I walk out the door this time of the year!!

I actually have an infrared point and shoot thermometer that I use for automotive repair to measure the difference in temps from one limb to the other. Not as accurate as what you'll find at a clinic, but sure can show how much different the temps can be! My podiatrist just laughed and showed him how I was getting my temp readings!
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Old 12-18-2012, 06:09 AM #5
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Speaking of infrared...I picked up a small infrared heater at Costco a while back (they have them back at my local one for winter) for around $50. It works AMAZINGLY to heat my cold limbs, unlike a traditional heat source.
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Old 12-18-2012, 09:54 PM #6
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Vrae.....

Anything that works, hon.......ANYTHING !
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Gee, this looks like a great place to sit and have a picnic with my yummy bone !
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Old 12-18-2012, 10:49 PM #7
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Not a bad idea!

I have hot and cold too, mostly related to the surrounding temperature. My RSD areas cannot regulate temperature at all, so they get really hot and stay hot if it's warm or hot, and get really cold and stay cold if it's cool or cold. I used to have to bring blankets in with me to my college classes in the winter, which I know got some strange looks- but I didn't care!
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Old 12-21-2012, 01:28 PM #8
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I struggle with cold hands and feet as well, heard something about people that are constantly stressed including dealing with severe pain have more of their blood around primary organs leaving the periphery cooler. A hair dryer sounds nice but may I suggest warm water being more cost efficient?
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Old 12-21-2012, 11:34 PM #9
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Default Both ways

Mine flip flop so much that I can't decide to be frozen or sweaty sometimes in the span of minutes. Drives me nuts. Even the scs doesn't help temp or swelling. Oddly, it does change the color. So many things affect it like weather, stress, sleep. It's ridiculous. Sometimes I wonder what will happen when I'm old.
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