Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-03-2013, 11:16 AM #11
CRPSsongbird CRPSsongbird is offline
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CRPSsongbird CRPSsongbird is offline
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Join Date: Nov 2012
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wow! 6 of them...ugh I would hate that. My dr. (mind you this is just his opinion) doesn't feel that it's productive to do so many he said he will only do 2 on rare occasions 3 blocks, before moving on to other treatment plans. I don't know how he ranks in the nation/world but he is "one of the best" CRPS/RSD treatment docs in my town.
I absolutely LOVE the Physical therapist he's sent me to. He studies and goes to conferences/lectures on CRPS and I LOVE his positive attitude. He gives me such hope that I CAN overcome this with hard-work and determination to get better! He has worked with a LOT of CRPSA patients in my town and believes we caught mine early enough to make a real difference, as long as the RSD doesn't go haywire.

I was wondering if your doctor talked about P/T (gentle mind you) while using some form of numbing agent/ anesthesia to make sure you're not in severe pain while doing P/T. He has a plan to trick my brain into realizing there isn't anything hurt so my body needs to stop trying to "protect" itself. basically do as many exercises/motions that you can slowly building up, trying to get your brain to respond to NORMAL movements that do not have pain, so your nerves and brain quit responding to the pain signals. I don';t know how that works for later stage patients, but he said it has a high success rate for patients in the "acute" stage.
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