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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   diagnosed with RSD but don't believe it (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/181917-diagnosed-rsd-dont-believe.html)

abbeyn93 01-10-2013 12:31 PM

My hamstring injury was in June. For three months, I was immobile.I would walk when capable but literally couldn't most of the time. I had an MRI that showed nothing,except inflammation. Then I was able to walk almost normal but not jump. However it got worse in December and now I can't do much except limp around.

I went to the orthopedic doctor today and he didn't know what to say. He wouldn't give me another MRI since the first one in September showed nothing. He prescribed me Neurontin 100 mg and told me to continue Physical Therapy and to see what the neurologist says.

I don't think he's even familiar with RSD. He wouldn't make any comment about it. He said he doesn't know if I have it.

He asked me if I had a psychiatric problem. I told him NOT AT ALL! THE PAIN IS MAKING ME DEPRESSED! He was nice but not helpful which is what I expected. Then he suggested I continue walking on it and avoid the wheelchair.

Since I live in NYC I might look into the Hospital for Special Surgery or Mount Sinai Pain Management Center. Hopefully my insurance is accepted.

loretta 01-10-2013 04:00 PM

Abbey, Hang in there. When is your appt. with neurologist? Is the neurologist experienced in RSD? Is there a local support group near you? RSDSA.org -the national organization has the list of groups in your zip code area. The group leader may have informaton for you in your area. Hang on to hope-it takes many tests and experience to correctly diagnose this disorder. It is certainly natural for you to be anxious and experience depression. Keeping getting as much informaton as possible. Neurotin is a common med for RSD-I was on 3200 mg. for several years, but no longer take it. I no longer have the electric shocks. Was on it for a few years-have had RSD since 1996, but not diagnosed for 5 years. Let us know how you are doing and what neuro. says. loretta

abbeyn93 01-11-2013 05:11 PM

The neurologist told me I don't have RSD.
He said I have minor nerve damage -cold feet, tingling sensation in toes,and recommended light physical therapy.
He checked my reflexes which were normal. He put vibrations on my leg and foot. I felt them so idk? Does having normal reflexes and feeling sensations without pain rule out RSD?

I'm really confused.
I told him that physical therapy made my pain worse. He said that I may have reinjured my nerve/muscle in physical therapy since my physical therapist made me use weights.

I don't know what to believe anymore. My symptoms have been getting a lot better this week even though it's uncomfortable to walk.
I'm probably going to give myself more time to see if my leg will get better. My parents refuse to make another appointment because they think I'm paranoid and the vascular doctor was wrong in diagnosing me with RSD especially since it isn't his field.

So I may be experiencing pain because I reinjured the muscle in physical therapy and my sciatica nerve is sensitive?

Thanks again everyone. I probably will still keep you guys updated because I'm still unsure. Maybe I'll seek a second opinion if my symptoms worsen.

I'm disappointed though because I didn't ask this neurologist certain questions because I forgot a lot of details.

loretta 01-11-2013 07:16 PM

Abbey, thank you for letting us know about your neuro appt. That's GOOD NEWS
from your neuro. Have you looked at the photos on this rsd site? Gives you an idea of what some of the RSD feet-legs hands look like. You haven't mentioned swelling-edema, which is a common symptom of RSD. Another symptom for many of us is sensitivity to touch. I'm hoping you don't have this- and I know you are scared of the possibility. Even before I was diagnosed, I was sent to physical therapy, which I am so grateful for, as I regained used of my shoulder-arm, then later when it spread to hand, was diagnosed- pt done in the right way, keeps us mobile.
Keep us posted-hoping for the best for you. loretta

abbeyn93 01-11-2013 09:20 PM

It might be good news but I still feel like i have some sort of problem. Also the neurologist doesn't seem knowledgeable in RSD. I told him a doctor suspected I had RSD but he told me that I don't have RSD because of no swelling or discoloration.

When I have flareups, I am extremely sensitive to touch and pressure and I still can't walk normally. When I do walk normally, the burning pain comes back hours later and I'm back to square one.

I might get an EMG test. Is that dangerous to do if you have nerve damage or suspect you have RSD? I guess I have to take the risk anyway.


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