Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-24-2007, 06:18 PM #10
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frogga frogga is offline
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frogga frogga is offline
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Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
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Yeh..

It is a nightmare!!! All I need is rain/ shower etc and I will have managed to go from black to red in about 2 seconds. It absolourly kills. So. I cheat. (I figure that to be honest I have better things to use with my "ok" time during the day when I can achieve things --> lectures, seeing friends, doing physio, wearing my legs, getting some work done etc.... and showers just knock me out for the next couple of days.

So, I tend to have bed baths at the moment and we wash my hair over the bath once a week. (or at the hairdressers - but as I'm in a solid cervical collar it's harder to wash it properly without me flopping everywhere.) I am currently waiting for my hoists to be put in and then I will hopefully be able to get in the bath...

With showers especially the pain is like... being stabbed and set on fire millions of times from each drop. We did come up with holding a sponge in front of the shower head to reduce the dripping but it is still so hard...

Love

froggsy xxxxxxxxxxxxxxx
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