NeuroTalk Support Groups - ketamine infusions

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - ketamine infusions (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/182005-ketamine-infusions.html)

Quote:

Originally Posted by loretta (Post 946128)

Hi Ashely, I am so sorry you are suffering so. This is a wonderful supportive group of fellow RSDers. I have not done ketamine, but know many have had good results. I had RSD before being diagnosed and it is full body. I also have severe headaches 24/7 and know how hard it is to deal with that. Especially since you have such severe symptoms in your head area, please be cautious if you were to need dental care. I take antibiotics before any procedure, even cleaning, and also have the laughing gas to relax me before dental work. Also before any blood draw, I have them use a butterfly needle as it is smaller and less invasive.
You will find much comfort and support here. Please let us know how your treatments are coming and if you find relief. loretta

Loretta hi I went for my 3rd inpatient ketamine last week He upped it to 130mgs. It was on a Thursday. I started to feel a pretty good reduction in the pain in my ears,eyes,face on Saturday. Is it weird that the pain reduction was not immediate? My doc cannot do the 10 day outpatient because he is not in the same office 5 times a week and he does not have the staff to watch over me, he has to have his associate come in on the day I have it done.
One thing at 130mgs I started to laugh out of control, then began to cry. This was the highest he ever went. First it was 30 mg then 60 then 130mgs.
Didn't really like what happened. But I felt ok as soon as he stopped. Is this a normal reaction. Ashley

Quote:

Originally Posted by alaska49 (Post 945250)

I have had ketmine infusions, I have full body and internal rsd I went through every treatment and seen 191 doctors in 7 states and nothing changed until I had ketmine. I did the in patient and the 10 everyday out patient then it went to 2 times a week for 4 weeks then once a week for a year usually its only for 4 weeks but I was so bad I needed i longer then it went to once evry 3 weeks now I only get them when Iam in a flare. but I also have ketamine nassal spray and lossanges which are a great help to me from going into flares. Iam sorry what your going through I too was at many points I just wanted to die as I couldnt walk, use my hands o f=eat so need feeding tubes I was hospitalized for 5 months before I was airvaced to cleveland.
Stay strong!

Samantha

Hi Samantha I posted under Loretta post to me, I also meant for you to read it. Rather than re-write under your post. How are you? Ashley

Ketamine Treatment.

Could other's please tell me about their experiences with the inpatient Ketamine treatment with Dr. Ron Harbut? he was in Arkansas before. Thank you.

Tyler perry- keep us posted on how you are doing. Hope all goes well for you!