NeuroTalk Support Groups - Migraines

I should also mention, that the doctor who treated the other child with migraines and RSD must use a different protocol for the DHE than your daughter received. This doctor does an infusion every 8 hours over the course of four or five days. She has done a fair amount of research on DHE (although not with RSD) and has found this protocol to be quite effective. It sounds like this another child's problems with her hand were similar to your daughter's. The pain has lasted a number of months, but it is gradually getting better. I just thought I would mention it in case you were at all interested in giving DHE another try before going for the stimulator.

Lori

Quote:

Originally Posted by Buckhorn24 (Post 949555)

LoriZ - My daughter had two DHE treatments in the hospital. The first last spring and it only helped for a few hours. The second in November and that only helped a couple of days. Both times they couldn't find the vein in her arm so after a couple of attempts they put it in the back of her left hand, and that took a couple of attempts to get it in. The fluids continuously dripped into her little hand for two days. They also gave her 37 botox injections in her scalp, forehead, neck and it was excruciatingly painful even with sedation. When she left the hospital, she did have so much pain in her left hand(ed) that she couldn't write her school work for a few weeks. But that did go away and now she doesn't have any lingering pains from it. The DHE and botox did not help her. Being that she's missed most of her classes since November with the migraine, we just pulled her out of high school and will do some home based schooling until she can get rid of the migraines.

We talked to the migraine doc at length, while he's never had anyone with RSD and migraines, he has implanted many spinal stimulators with no lasting rsd pain. He felt confident that it was a very minor incision and with proper care there would be no long lasting or permanent pains. We have to do something to stop the migraines, she rarely leaves the house anymore.

Here's the link for what she's having done in Dallas http://www.reedmigraine.com/procedure

Feel free to PM or respond with any questions on it.

Mike