NeuroTalk Support Groups - RSD and Disability Insurance

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - RSD and Disability Insurance (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/182600-rsd-disability-insurance.html)

Quote:

Originally Posted by Nanc (Post 950013)

Thanks Jimking and Ironbutterfly!

My husband went with me yesterday to see my pain doctor. We discussed him writing a letter to describe how the pain of RSD is impacting me and the use of my hands. I went over a list of things with him that he needs to include in the letter, he agreed with it all and his nurse was also taking notes. They are going to email me the letter since I am still waiting for the denial packet (with appeal instructions). I think my doctor is in my corner now. I told him that he was the only one who could help me at this point and he said he would.

That is great news. :)

That's HUGE !

Obviously, doing extra paperwork is extra work for docs. Unfortunately, that gives them some incentive to not be as thorough as we need them to be. I'd like to offer to do that lecture for them in medical school.....there are MANY ways to help a patient. Making the right diagnosis and ordering the right treatment(s) is just part of the job. Addressing psychosocial needs like finding a way to pay for meds and accessing insurance benefits (be it STD, LTD, WC, SSI, SSDI or insurance approval for a treatment) is also a part of a doctor's job.

Sounds like you've got a keeper there !

Quote:

Originally Posted by finz (Post 950329)

I do really like this dr I am currently seeing. As my husband says, he is the only one who has helped me and who seems to care about me. I think my dr is now at the point where he can't do much else for me because of my allergies and adverse reactions to pretty much everything. He did implant the SCS's for me and they are a huge help! This is the first time I have had a dr that I can email and he actually replies very timely!!

I know that doing this extra paperwork is a hassle for drs, but it is so necessary to get anything accomplished! My PCP has had to contact the insurance co numerous times for prescription exceptions. It didn't work, but she tried.

I have been through so many bad doctors, it is nice to finally have a couple of good ones!!

Quote:

Originally Posted by Nanc (Post 948649)

Hello All! I need some help. I have applied for disability through my work's short-term/long-term disability insurance carrier. They have denied my claim even though records document RSD/CRPS in my face and all four extremities. Does anyone with RSD who has gone through this process have any tips or recommendations for me?The medical review staff with the insurance company said that I could do sedentary work and my records did not indicate otherwise.

I had a functional capacity evaluation (FCE), but it only tested my strengths and weaknesses. It did not test anything related to using my hands all day at work, etc.

I am obviously going to appeal, but would appreciate any helpful information.
Thanks!!
Nanc

Hi nance. I too had to go through the STD ins through work. it requires in writing in the notes submitted that you are fully disabled, if you see multiple dr,s tell them that this is what it must say in their notes. if you still have issues and they dod not ask for an IME you may ask for arbitration through the carrier. and you must present the case. (through paper work,) hopefully your state has RSD/CRPS guide lines.
If they do printing them out ans submitting them to the carrier would be prudent as well. good luck I know this worked for me I hope you get the same results

Quote:

Originally Posted by painman2009 (Post 950492)

Thanks painman! Question - what do you mean about my state having RSD/CRPS guidelines?