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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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04-27-2007, 01:06 PM | #1 | |||
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Magnate
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Thanks so much for the help and the good words for me and to me. I sure do appreciate all of you on here. Even though I have my kids and my grandkids I am still living alone and at times feel alone. So I can come on here when I am bored, lonely, or down and get my laughs and get good support.
Brokenwings, I appreicate the info you gave me. I have actually been through all of those test. I've had the angiogram twice but I just didn't know if this thing would interfere with the machines. I do know that for me to have an MRI it has to be taken out, they told me that. I guess I'll never have an MRI again. LOL One of the girls down at my Drs. office is setting up my appt. I called the Cardiologist and since I hadn't been there in awhile they needed a referral so Debbie said she'd just get it done for me. I was having second thoughts about going through all of this. I hate those trips out of town, God forbid that they could do it all in one day. IHH, like you, I lost Mom, my Grandmother and both Grandfathers to heart attacks and the rest of my family all go with cancer. As far as my strength, it took me 20 years of medical problems and my Dr. that I always put in the catagory of Sainthood to help me get it. When I'm down he is always pulling me back up. He's always telling me to fight for what I believe in and what I need. Awhile back he said he had to talk me back down because I was coming on too strong with my Drs. and him. LOL I always tell him he's taught me well. I never ever would have thought I could have made it as far as I have. My Neurolgist handed me an Oprah Magazine about 2 years ago and told me he wanted me to write my story. I thought now which disease or illness do I write about. LOL The one that interests me the most is the depression but I didn't know how to incorperate all of my other medical problems into a story. My brain wouldn't let me think straight anyway. It has been the hardest journey I have ever taken in my life but at times now I think I am seeing the end of it. I still know I have about 6 more surgeries to go and what else I don't know but I try to take them as they get worse and we can't control them with shots and meds. I know when I'm ready for one when my PCP says ok, lets look for a Surgeon. LOL That tells me he needs some relief from putting up with me. LOL At times I think I might one day get to go back to work but I honestly know at 55 that's not going to happen. Do any of you still think that way? I know there are people out there that are worse off then I am and I wish they could get to a better place in their lives but I realize a lot of them won't. Thanks again for the help. Ada |
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04-27-2007, 01:51 PM | #2 | ||
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I am sorry, Ada. My great grandmother died of a heart attack. My grandmother has had two heart attacks, and we think my grandpa died of a heart problem (no autopsy was done- he was 67, and he had a lung condition, heart condition, etc... he died right after a surgery he had to put in a breathing tube). With heart conditions running in the family I guess it's no wonder that with both my mom's mom and my mom's grandmother having a heart condition she would have one too... hers is mostly palpitations of the heart/ chest, upper back pain and the typical pain running down the left arm. She found that with taking magnesium -which would relax the muscles of the heart- her heart won't act up as much! My mom had to have an echocardiogram done, and have a monitor placed to monitor her heart for 48 hours, and then she took it back to the Cardiologist and he read the results. Doesn't make me feel good that heart conditions run in the family... I think I am next... My grandmother did find that with eating well (low carb diet, low fat) her heart condition has been a lot better. She is also a diabetic, and so the diet was needed anyways. My grandmother had many tests done, and one she had was where they fed a wire up her, into her heart to make sure things were okay (after she had a bad episode)... I *think* she has a stent or something in her heart... she found that with stress her heart would "act up". Stress makes a lot of conditions worse, I believe... stress is hard on the body. Relax... don't stress about anything... |
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