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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Member
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Geeeze… I have been a mess for almost a month now with SO MANY SYMPTOMS GOING ON . lol… okay longer than that but all things RSD have been attacking me like crazy for several weeks now.
So my lower back is a problem and a discectomy at L5 S1 back in 2004brought the RSD on. I now have a couple more discs involved that are bulging. Anywho, a week or so ago I went to see the doc about a massive back spasm that I couldn’t get under control and was out of the proper meds. I have spasms elsewhere too, like my legs, and I tremor like crazy without proper doses of gabapentin, and sometimes tremors even with meds depending on the circumstances. The doc and I discussed options and for whatever reason they seem to not want to give me what I already know works, which is Soma. I compromise and settle on Baclofen. I had heard many good things about this drug and thought ok. So it did help in some regard in that my back started to feel somewhat better, but I had the strangest experience on this drug and wondered if anyone else has too. After I took it (Baclofen), I started to feel the way you feel just before anyone can see the tremors. It’s like a vibration or restless leg syndrome, BUT all over my body! Needless to say, I ditched that drug and I am back on Soma, praise God. I don’t need the Soma every day, but when I need it, be it for my legs, or my back, I really need it. Thanks in advance for any responses. If I owed you a response before now on some other post / thread, I apologize, but goodness, the RSD has not been kind at all lately and times of even feeling well enough to respond have been few. ![]() |
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#2 | |||
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Sorry to hear your not doing so well. My personal opinion is for you to stick with what you know works. I like soma myself also. It is an older medication and not as commonly used. But it works. I would definetly speak up if the baclofen doesn't end up working for you.
Hope you feel better soon.
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. GOD help me be faithful in the midst of my suffering. Alt1268 |
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"Thanks for this!" says: | Vrae (02-03-2013) |
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#3 | |||
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Elder
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I can't get my insurance to ok my script for soma....
![]() My doctor wants me to take it 3 times a day.... my insurance is saying no. My pain is screaming for any kind of relief.
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My avatar pic is my beautiful niece Ashley! . Rest in Peace 3/8/90 ~~ 4/2/12
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"Thanks for this!" says: | Vrae (02-03-2013) |
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#4 | |||
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Quote:
so sorry to hear this hon. I will never understand why or how insurance dictates all... makes no sense at all! I sure hope you get some kind of relief soon! |
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#5 | ||
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I've wanted to try Soma for my muscle spasms for years - no doc will prescribe it to me. Yet, they give me lots of baclofen. (shrugs shoulders)
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#6 | |||
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I'm on a baclofen pump for Dystonia and spacticity. Friday, my Doctor added Tizanidine to my regimen. We've also been trying Botox injections (with some limited success). I hope something works soon. My cramping, twitching and twisting have been awful. Doctor seems to think that winter may be exacerbating my symptoms in that regard.
I had't heard of Soma. Something else for me to check out. Hope you will find some relief soon. |
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