Hey

Have been wondering about this alot....

do you get hyperactive sometimes with your pain?

I get to a point where I am so tired and sore that I go hyperactive - I know that I will crash afterwards but in that time I can get so much done. It feels almost like my brain is trying to let me have the chance to sort everything out for a couple of days.

Admittedly I do then realise that I actually achieved nothing but rubbish in that time - but oh well, what a suprise!!!!

Any thoughts would be appreciated - I think it's adrenaline crises..??

Love

Froggsyxxxxxxxxxxxxxxx

I have to say that if I feel at all 'normal', I tend to go like heck and do as much as I can. I think I figure I am going to suffer later anyhow and so why not! I don't think of it as a hyper state, but as a normal moment, acting the way I used to .... pre RSD. I think of life as pre and post RSD.
My goal is to keep my spirits up and take the life I have and accomplish as much as I can despite the RSD, and I will do that for as long as I can.
So, enjoy your hyper moments ... whatever they are, they feel good, don't they? joan

Yes, This is me... If I feel normal at all! Running around trying to do chores, and lost items that seem to never get touched when I am docile.

I will say that I have caused so many painful flares, that my DH follows me around the house (lately) and begs me to stop. He is now trying to mentally sidetrack me onto something else, so I will stop.

It is frustrating because DH and DD try so hard to keep up with the house, but it is not my **** little way. The things that annoy me they do not even seem to notice.


Ahh Well, What can someone disabled do but cope and function the best we can

Hugs,

Rain

Frogga,
I understand what you are saying, I think. If you are asking if anyone gets more active because of their pain...then I have to say that I do. I haven't really every thought about it being some sort of hyperactivity, but more as being really restless.

If my pain gets higher, I get restless and have to move around a lot. I am also irritable, and grouchy, and figure that while I am up and moving, I might as well go ahead and get some things done, since I hurt so badly anyway....maybe it will help get my mind off of it. LOL...it usually doesn't work out that way, but that doesn't seem to stop me from doing this time and time again.

I also have gotten so over tired and exhausted that I "pass my sleepy point", and can't go to sleep no matter how much I wish I could. Sometimes this is due to an increase in pain and happens along with the restlessness, but it can happen on it's own too if there is anything that is going on that causes me to not be able to fall to sleep when I really could. If that makes any sense at all (probably not...LOL).

Sometimes, when pain levels are really bad and I am restless, I think that not only am I trying to do "stuff" to distract me from the pain, but also in the hopes of just tiring myself out so much that I will have no choice but to fall to sleep, no matter how badly I hurt. That also doesn't usually happen, but again, I still wind up doing it anyway.

But, then, I think that we all have the same thing going on that Rain and Joan do, and tend to over do things when we are having "good" or even just "better" days, in the hopes of getting lots of stuff accomplished that we usually can't. I know that I am guilty of that BIG TIME. I will do all kinds of things, just because I am feeling better...trying to take advantage of that time as much as I can, even though I KNOW that I am going to pay for it. Probably be paying for it later that very day, or the very next day at the latest. But, I think that these are two separate issues here...unless I have totally misunderstood what you were asking? If I haven't, then I can tell you that you aren't alone. LOL, if I have...then I am stumped. ( which seems to be a constant state for me lately. LOLOL)

I hope that you have a better day today. You really deserve a break.

Love and ((hugs))
Jose

Hi Frogga,
i'm interested you raise this because i have been doing tons of medical research on adrenal crises in RSD lately. It's definitely an RSD symptom that's part of the "S" in RSD - sympathetic nervous system dysfunction. It used to be studied and published about a lot more in the 80s and 90s than it is now. But hardly any doctors seem to be writing about it now, so there aren't any treatment guidelines.
The only papers I've found in the past 5 years are by Dr Harden in Chicago. I've found better articles describing the adrenal crises problem in the Parkinsons field and the traumatic brain injury field. All basically from the same cause: sympathetic nervous system damage/failure causes the adrenal glands to go out of whack. E.G. your blood sugar doesn't regulate properly anymore, so, just as in diabetes, the fight-or-flight response kicks in, your adrenal level shoots up through the roof, your heart pounds like crazy, you get 'restless', 'hyper', you may even get the shakes ('paroxysms')('reflexes' - get it? Sympathetic Reflex dystrophy) or seizures, emotionally you may get extremely irritable, angry, irrational, pointlessly focused on some task or discussion.
It's a real, RSD-driven symptom. Isn't RSD lovely? It's not only pain, movement disorder, temperature & skin disorder - it also messes up your brain so your adrenaline and blood sugar and blood pressure go bonkers.
So sweet mild-mannered Frogga may periodically turn into a raging boxer! I think RSD needs to be fairly advanced before the adrenal system is affected, so perhaps most people posting haven't experienced this? [for those who love definitions, by "fairly advanced" I mean, after the pain has been around long enough to have converted into independently maintained sympathetic pain].
I'd be very interested to hear from others. It can begin subtly and not be noticeable by yourself at first; more likely, a spouse or roommate will get annoyed and comment on it before you realize there's been a change in your behavior or mood.

I get some hyperactivity with pain. I feel like I have so much energy all of a sudden, but do not know why I feel this way. It is strange because I am so tired from not sleeping rightly and I wouldn't think I would feel hyperactive while being so exhausted.
Wow, Molly I was glad to read what you posted.