[InHisHands]

Yay, my friends! Finally... I had so many people tell me "seizures" when I mentioned passing out... no, as I thought, seizures weren't causing the passing out for me. I checked my blood pressure as I felt faint and it was 96/53 and standing it was 88/50!!

Though I had already been checked to be sure it wasn't blood pressure problems back in May, it really has been. The reason it wasn't that low when I was checked months ago for it is because I hadn't felt faint and hadn't had my pain sky high at that particular time.

My pulse was 62! But when my blood pressure gets high 146/123 my pulse is around 135!

Problem is: no doctor can do anything when sometimes it's sky high and other times SO low!

Thought I'd share as we had discussed my passing out a while ago...

[Jomar]

Did they test the BP in both arms and compare those numbers??

Just curious about that because those with TOS sx can have differing readings in the arms due to positioning & if only 1 side is affected vs both or if 1 side is severe and 1 is mild etc.
Maybe RSD does a similar thing.

1 with TOS gets BP checked in her leg to find the real # for her.

[InHisHands]

Originally Posted by jo55

Did they test the BP in both arms and compare those numbers??

Just curious about that because those with TOS sx can have differing readings in the arms due to positioning & if only 1 side is affected vs both or if 1 side is severe and 1 is mild etc.
Maybe RSD does a similar thing.

1 with TOS gets BP checked in her leg to find the real # for her.

Nope... just tested my left arm, which is the better of the two RSD allodynia wise. That's a thought... will test both arms then.

[frogga]

IHH - I agree with Jo - get the bp checked on the thigh.

You might have orthostatic blood pressure where your body can't work with going from sitting to lying down fast etc. And actually fits in with the whole sympathetic nervous system thing that RSD is. It could also be a contributing effect to your jelliness (well, come on! imagine not having blood going to your brain, which always takes priority, so then decideds to chuck you on the floor to give you more brain blood). Ok. that's my guess anyway. I know a dr explained it some time back, but i wasn't feeling great when he explained so I just tried to look intelligent and fight the urge to throw up all over his nice expensive suit!

I think that orthostatic bp is pretty easy to test for and I think that some meds will help it? Mine isn't treated atm because I am never standing or even sitting straight and upright.

Will email you back in a bit sweetie, but gotta go and shoot a rabbit that just arrived via Willumywoo....

Love ya tons

Froggsy xxxxxxxxxxxxxx

HI IIH,

If I was you I would have them check both pulse rates as well. Ask them if one seems stronger than the other. Much Love, Roz

[betsyherm]

Ness,

This is a diagnosable and treatable problem, I believe. There's something called a tilt table test. I had a friend (admittedly, not a very GOOD friend) who had problems like that. I believe the condition she had was called POTS (postural orthostatic tachicardia syndrome). It's a form of dysautonomia (and many believe RSD is too). I'm not sure how it's treated, but I know that there are medications that can help it.

Soo...the moral of this little story is to pursue this problem and attempt to erradicate it. In regular language, see a doctor and treat it. It doesn't have to be like this!!

Love,
Bets

Postural orthostatic tachycardia syndrome (or POTS) is a condition of orthostatic intolerance in which a change from the supine position to an upright position causes an abnormally large increase in heart rate, often, but not always accompanied by a fall in blood pressure.

The syndrome was identified as such by Schondorf and Low in 1993. Similar symptoms were collectively described as "idiopathic hypovolemia" by Fouad in 1986. A comprehensive historical account is given by Grubb (2002).

Symptoms include an abnormally large increase in heart rate upon standing, lightheadedness, extreme fatigue, nausea, headache, exercise intolerance and impaired concentration. Patients may exhibit mild hypotension while standing, but most do not experience fainting. Patients with POTS may frequently be misdiagnosed as having panic attacks or chronic anxiety disorder (Grubb, 2002). POTS patients are usually significantly debilitated by their symptoms.

POTS is often difficult to diagnose. A routine physical examination and standard blood tests usually will not indicate POTS. A tilt table test is vital to diagnosing POTS although all symptoms must be considered before a final diagnosis is made. A test to rule out pheochromocytoma is usually performed. A blood test may be performed to verify abnormally high levels of norepinephrine usually present in POTS patients (Raj, 2006). Inappropriate sinus tachycardia must also be considered as there is an overlap in symptoms of IST and POTS. About 80 percent of patients diagnosed with POTS are female and of menstruating age.

The causes of POTS are not fully known, since the term describes a collection of symptoms rather than a disease. It is generally believed to be a case of dysautonomia. Its onset is sometimes associated with an inflammatory condition such as a viral infection. An overlap of symptoms with chronic fatigue syndrome may suggest a pathological overlap in some cases.

http://en.wikipedia.org/wiki/Postura...ardia_syndrome

[InHisHands]

Originally Posted by buckwheat

Postural orthostatic tachycardia syndrome (or POTS) is a condition of orthostatic intolerance in which a change from the supine position to an upright position causes an abnormally large increase in heart rate, often, but not always accompanied by a fall in blood pressure.

The syndrome was identified as such by Schondorf and Low in 1993. Similar symptoms were collectively described as "idiopathic hypovolemia" by Fouad in 1986. A comprehensive historical account is given by Grubb (2002).

Symptoms include an abnormally large increase in heart rate upon standing, lightheadedness, extreme fatigue, nausea, headache, exercise intolerance and impaired concentration. Patients may exhibit mild hypotension while standing, but most do not experience fainting. Patients with POTS may frequently be misdiagnosed as having panic attacks or chronic anxiety disorder (Grubb, 2002). POTS patients are usually significantly debilitated by their symptoms.

POTS is often difficult to diagnose. A routine physical examination and standard blood tests usually will not indicate POTS. A tilt table test is vital to diagnosing POTS although all symptoms must be considered before a final diagnosis is made. A test to rule out pheochromocytoma is usually performed. A blood test may be performed to verify abnormally high levels of norepinephrine usually present in POTS patients (Raj, 2006). Inappropriate sinus tachycardia must also be considered as there is an overlap in symptoms of IST and POTS. About 80 percent of patients diagnosed with POTS are female and of menstruating age.

The causes of POTS are not fully known, since the term describes a collection of symptoms rather than a disease. It is generally believed to be a case of dysautonomia. Its onset is sometimes associated with an inflammatory condition such as a viral infection. An overlap of symptoms with chronic fatigue syndrome may suggest a pathological overlap in some cases.

http://en.wikipedia.org/wiki/Postura...ardia_syndrome

Thanks so much Roz!!

IIH,

It's doesn't appear to mention pain though. Big Hugs, Roz

[frogga]

but linked to the whole SNS thing!! I mean RSD is partially a disorder of the autonomic system, and so dysautonomia may well be linked with part of RSD.

Seems to be you get one type of disease and everything else falls to pieces!

Thanks for finding out the name Roz - I couldn't remember it's proper name for the life of me.

Love ya

Froggsy xxxxxxxxxxx