Positive for autonomic diseases
 

I am a 34yr old female. No major health issues to speak of and have work in nursing for over 12 years. Starting last Aug 2012 I started having really high bps 180/120 with 115 pulse then dropping as low as 60/30s 42 pulse. I have never had these issues before so of course we started a full work up. Several tests and specialist later my newest doc sends me to the Mayo Clinic in Rochester MN. Now I have been under medical leave since July. So I drove from Indiana to MN with the last of my savings. Twelve days later I am told I have Dysautonomia. THe doc wanted to do a sweat test but I was out of income. So here is the question while waiting for disability that I filed for in October what do I do to make it until I can go to Mayo again. I am on Clonidine that does it`s very best to control my Bps but sometimes getting to one side of the bedroom to the other is a challenge. I hurt everywhere and forget more then I remember. I have agreed to take psych meds that I vowed I would never take and feel lost and angry all the time. I feel like I have no one to talk too and my doctors have no idea how to treat me. We think I have pots but my symptoms have progressed quickly. I want to try and slow it down but..... how? Until I can make it back to Mayo can anyone give my guidence?