Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 03-03-2013, 03:11 PM #1
Angelina55's Avatar
Angelina55 Angelina55 is offline
Member
 
Join Date: Feb 2013
Location: Post Falls, ID
Posts: 175
10 yr Member
Angelina55 Angelina55 is offline
Member
Angelina55's Avatar
 
Join Date: Feb 2013
Location: Post Falls, ID
Posts: 175
10 yr Member
Default Food for CRPS

I am trying to change my diet to help with my pain I am having with CRPS. I am having a hard time finding information or even where to start looking. I am not very smart when it comes to nutreitrion. lol I just want to find out what foods are good to eat and which are bad to eat. SO if anyone can help or point me in the right direction that would be great!

I know that certain foods can help with like inflammation or something??
Angelina55 is offline   Reply With QuoteReply With Quote

advertisement
Old 03-03-2013, 06:08 PM #2
Morgan Herritage's Avatar
Morgan Herritage Morgan Herritage is offline
Member
 
Join Date: Jul 2012
Location: Northern California
Posts: 131
10 yr Member
Morgan Herritage Morgan Herritage is offline
Member
Morgan Herritage's Avatar
 
Join Date: Jul 2012
Location: Northern California
Posts: 131
10 yr Member
Default

Look up foods that help the cardiovascular system. If its one thing that helps crps, it's happy-flowing blood.
__________________
Synthetic right hamate hook.
Rsd type 2
Morgan Herritage is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Angelina55 (03-04-2013)
Old 03-03-2013, 07:24 PM #3
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default

I changed my diet to follow the Four F's Diet which you can see here:

http://www.rsdrx.com/four_f's_diet.htm

Basically the Four F's are: Fish, Fowl, Fresh Fruit, Fresh Veggies

That link also shows you foods to avoid like coffee, caffeine, sugar, etc. This in an older website so it's not the most recent information. If you do a search for things like "inflammation diet" or similar you will probably find more current information.

But this has worked for me. It's only one of many things that I have done to help my RSD but it DOES make a difference. I am not 100% strict and do "cheat" from time to time...but on a regular basis I am pretty good about sticking to the four F's and avoiding the bad stuff. My biggest compromise is that I cannot drink straight water and things without sugar. I cut the pop out of my diet completely though and have switched to juice and vitamin water. Since I don't get sugar from much else that I eat...I think it's a good compromise.

And I can tell when I don't eat right. When I went to AZ to visit my grandma last month we didn't go to the grocery store the first day to get me food so all I had to drink was pop and all the food was processed junk (which used to be all I ate and drank before changing my diet). The next day my RSD was worse...the inflammation was worse...and I felt sort of like garbage. Once I got some veggies, something other than pop to drink, and stuff for dinner (I made a nice meal for my grandma...she was so impressed that I know how to COOK now...lol) I felt a lot better the next few days. This is just one example...but any time I have strayed from the plan more than just one thing here or there every couple weeks I can tell very quickly.

Good luck. It's not easy to change the way you eat but I definitely think it's worth it.
catra121 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Angelina55 (03-04-2013), birchlake (03-03-2013)
Old 03-03-2013, 08:33 PM #4
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default

Another thing that I changed at my doctor's recommendation was that I eat much less sodium. When I season my food I generally don't use salt but other seasonings. I did this at the same time as changing to the Four F's diet so I don't know if it helps more or not...but I figure that it can't really hurt, right?
catra121 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Angelina55 (03-04-2013)
Old 03-03-2013, 08:51 PM #5
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
Default

I had difficulty following the 4 F's diet that Catra linked until I discovered the Paleo food movement, which allowed me to incorporate the 4 F's diet more easily. There are various books and websites that offer additional info, but the one I used was Marksdailyapple.com and if you stick to the forums you can access all the info for free.

Like Catra, I can get away with a cheat day, once a week works for me, but I still try and make smart choices. I'm able to indulge in high quality, flavorful and filling food, without counting calories every day. The foods that set me off are carbs--some being worse than others. Flour based products are my kyrptonite, lol.

The 4 F's allows diet soda, which throws my blood sugar into a tailspin. Hooshmand's website is a bit outdated, and at the time he wrote the diet very few doctors recognized the relationship between artificial sweeteners and it's effects on insulin.

Processed food is filled with junk that healthy people shouldn't be consuming, but with those that have RSD/CRPS, I think many of the systems in our bodies are often dysfunctional. By eating foods that don't create additional stress to those systems, you can improve how you feel (in theory at least, but I feel a HUGE difference when I eat badly.)

Catra: I was a diet Coke junky as a youngin but kicked the habit long before developing RSD/CRPS. There are times when I do feel like drinking something sweet though. Regular soda is out because I won't consume corn syrup. A few times a year I'll get a high quality root beer or ginger beer made with sugar. At home, I make lemonade or Arnold Palmers with raw sugar or raw honey, and I make a sparkling limeaid or sparkling cranberry with no sugar added juice, sparkling water, and maple syrup (the real stuff). I can make it to my desired sweetness level for that particular day--sometimes hardly any, sometimes very! Once in a while I'll indulge in a small glass of fresh apple, lemon juice. I find that these are better tasting, and don't make me feel miserable (well--more miserable, lol!)
LIT LOVE is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Angelina55 (03-04-2013)
Old 03-03-2013, 09:00 PM #6
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default

Quote:
Originally Posted by LIT LOVE View Post
Catra: I was a diet Coke junky as a youngin but kicked the habit long before developing RSD/CRPS. There are times when I do feel like drinking something sweet though. Regular soda is out because I won't consume corn syrup. A few times a year I'll get a high quality root beer or ginger beer made with sugar. At home, I make lemonade or Arnold Palmers with raw sugar or raw honey, and I make a sparkling limeaid or sparkling cranberry with no sugar added juice, sparkling water, and maple syrup (the real stuff). I can make it to my desired sweetness level for that particular day--sometimes hardly any, sometimes very! Once in a while I'll indulge in a small glass of fresh apple, lemon juice. I find that these are better tasting, and don't make me feel miserable (well--more miserable, lol!)
My go to drinks these days are the Vitamin Water and Naked Juice (but that gets expensive so it's mostly vitamin water with maybe one Naked Juice every other day or so). I feel loads better since ditching the Coke...and don't even miss it anymore. I know Vitamin Water isn't "healthy" or at least not as healthy as some people think...but it is better than the Coke.

I've tried drinking straight water a couple of times where I cut out everything else but I get a terrible gag reflex with regular water. Even flavored water just doesn't taste good to me. When I've limited myself to just water I end up extremely dehydrated from not getting enough fluids. I know...I'm a freak...but it is what it is.

I might try some of your suggestions though...just to see how I like them. Nothing wrong with mixing things up a bit and giving myself some more options.
catra121 is offline   Reply With QuoteReply With Quote
Old 03-04-2013, 12:04 AM #7
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
Default

If you're going to drink juice, it's best to find a juice bar or juice yourself. Many of the nutrients in juice have a short life span, and juice is of course crazy high in natural sugar. Although naked juice is certainly one of the better options if you can't do fresh.

The spritzer option is really the easiest way to start. Simply mix your preferred juice with Perrier or whatever your preferred brand is. Adding lemon, lime, or 100% cranberry (trader joe's has a good one) for a little kicker can help as well. The more you get used to it, the more water you can add. If you've ever had Vietnamese food, their recipe for lemonade is lemon, sugar, and sparkling water. There are also some interesting ice teas that have fruit notes but no sugar or sugar substitutes as well.

Do you dislike all water? I know this sounds silly, but some do taste better than others. I have a filter system on my sink that does a good job, but my favorite designer water is Voss, and Fiji being a distant second. Nothing like encouraging an expensive new habit, but Voss is high in silica and so it's very smooth.

I've never tried Vitamin Water because it's not terribly lower than soft drinks in it's sugar content. I also still perceive fizzy drinks as more of a special treat for some reason?

If you experiment, raw honey and pure maple syrup are sickeningly sweet, so a small amount goes along way.

Quote:
Originally Posted by catra121 View Post
My go to drinks these days are the Vitamin Water and Naked Juice (but that gets expensive so it's mostly vitamin water with maybe one Naked Juice every other day or so). I feel loads better since ditching the Coke...and don't even miss it anymore. I know Vitamin Water isn't "healthy" or at least not as healthy as some people think...but it is better than the Coke.

I've tried drinking straight water a couple of times where I cut out everything else but I get a terrible gag reflex with regular water. Even flavored water just doesn't taste good to me. When I've limited myself to just water I end up extremely dehydrated from not getting enough fluids. I know...I'm a freak...but it is what it is.

I might try some of your suggestions though...just to see how I like them. Nothing wrong with mixing things up a bit and giving myself some more options.
LIT LOVE is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Angelina55 (03-04-2013), catra121 (03-04-2013)
Old 03-04-2013, 05:59 PM #8
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default

I do dislike all water. Some are worse than others...but even the "better" ones were still too nasty for me. I'd go a whole day and have drunk only half a bottle...it wasn't good.

I will experiment a little though and try some of your suggestions.
catra121 is offline   Reply With QuoteReply With Quote
Old 03-05-2013, 04:12 AM #9
CRPStweet CRPStweet is offline
Member
 
Join Date: Jul 2012
Location: San Diego, CA
Posts: 167
10 yr Member
CRPStweet CRPStweet is offline
Member
 
Join Date: Jul 2012
Location: San Diego, CA
Posts: 167
10 yr Member
Default

Can you please clarify - so is jiuce not good for CRPS since it is naturally high in sugar? thx!
CRPStweet is offline   Reply With QuoteReply With Quote
Old 03-05-2013, 06:54 AM #10
Angelina55's Avatar
Angelina55 Angelina55 is offline
Member
 
Join Date: Feb 2013
Location: Post Falls, ID
Posts: 175
10 yr Member
Angelina55 Angelina55 is offline
Member
Angelina55's Avatar
 
Join Date: Feb 2013
Location: Post Falls, ID
Posts: 175
10 yr Member
Default

Quote:
Originally Posted by sallysue View Post
Can you please clarify - so is jiuce not good for CRPS since it is naturally high in sugar? thx!
I was told to just not drink too much of it, because of all the natural sugars in it. I used to drink alot of orange juices, so I was told to but a couple of orange slices in my cup of water instead. But as far as I know drinking to much juice is not good. Having maybe a glass about every other day or maybe once a day might be ok, but I am not sure.

This is just what I was told. Hopefully this will be helpful.
Angelina55 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
hannah1234 (03-18-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Whats on my food.org / pesticides on our food... lou_lou Parkinson's Disease 0 06-04-2010 06:33 PM
Favorite food and food you won't eat Earl Social Chat 46 04-28-2008 11:21 AM


All times are GMT -5. The time now is 01:32 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.