Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 03-10-2013, 10:42 AM #1
yorkshireste yorkshireste is offline
New Member
 
Join Date: Mar 2013
Location: Huddersfield,West Yorkshire,England
Posts: 2
10 yr Member
yorkshireste yorkshireste is offline
New Member
 
Join Date: Mar 2013
Location: Huddersfield,West Yorkshire,England
Posts: 2
10 yr Member
Confused TENS machine agony

Hello everybody, i broke my ankle around April 2011,the bone healed perfectly however i was still in agony,i was diagnosed with CRPS and started physiotherapy and medication,im on the maximum dosage of Pregablin 600mg per day,Fentanyl 50mcg transdermal patches,Dhc continus 120mg,Temazepam 20mg at night,i think you would agree that is alot of medication,however my life started to change for the better,i started sleeping well and became able to walk with one crutch and could feel less pain,life became bearable,then 2 weeks ago i came across an unused TENS machine that i was given by the pain clinic16 months earlier,i put it on my ankle for 10 minutes,now im back to the beginning again,cant stop crying,feels like a horror film,whats happening to me?
yorkshireste is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Abbie (03-10-2013)

advertisement
Old 03-10-2013, 12:39 PM #2
reluctant@thetable reluctant@thetable is offline
Member
 
Join Date: May 2012
Location: Wisconsin
Posts: 144
10 yr Member
reluctant@thetable reluctant@thetable is offline
Member
 
Join Date: May 2012
Location: Wisconsin
Posts: 144
10 yr Member
Default

Quote:
Originally Posted by yorkshireste View Post
Hello everybody, i broke my ankle around April 2011,the bone healed perfectly however i was still in agony,i was diagnosed with CRPS and started physiotherapy and medication,im on the maximum dosage of Pregablin 600mg per day,Fentanyl 50mcg transdermal patches,Dhc continus 120mg,Temazepam 20mg at night,i think you would agree that is alot of medication,however my life started to change for the better,i started sleeping well and became able to walk with one crutch and could feel less pain,life became bearable,then 2 weeks ago i came across an unused TENS machine that i was given by the pain clinic16 months earlier,i put it on my ankle for 10 minutes,now im back to the beginning again,cant stop crying,feels like a horror film,whats happening to me?
My crps started in my foot. I asked my PM about a TENS unit and he told me that TENS units don't work so well on foot/ankles. They work much better for the upper extremity crps cases. Good luck.
reluctant@thetable is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Abbie (03-10-2013), yorkshireste (03-14-2013)
Old 03-10-2013, 02:59 PM #3
Abbie's Avatar
Abbie Abbie is offline
Elder
 
Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
15 yr Member
Abbie Abbie is offline
Elder
Abbie's Avatar
 
Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
15 yr Member
Default

I tried a tens unit..... felt really good at first but after a few days it made the pain in my foot waaaaaaaay worse!!!!! I had to stop using it and havn't used it since. It's not worth the pain!!!!!

It took a long time for the pain to ease.

I wish you the best!!
Abbie
__________________
My avatar pic is my beautiful
niece Ashley!

.
Rest in Peace
3/8/90 ~~ 4/2/12
Abbie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
yorkshireste (03-14-2013)
Old 03-10-2013, 04:19 PM #4
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default

I use a TENS unit on my ankle and it helps the pain a lot. Everyone is different. My first encounters with stim were at physical therapy sessions where they used the stim in combination with heat at the end of out sessions and it helped a lot. It's definitely something that I think I benefited from because my first uses were under the direction of someone who knew what they were doing. I know the right placements for the electrodes and I know at what settings and for what lengths of time to use them.

I have definitely found that the TENS unit helps if I can surround the area of pain with the electrodes which works usually when I have certain areas that flare up worse than others. It does not help in RSD areas where the pain is more generalized or covers a larger area. It helps with certain kinds of RSD pain (namely the flare ups and the bone crunching pain) but less with others (like the wide spread burning or hypersensitivity).

I'm sorry that you are suffering right now and hope you find some relief soon.
catra121 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
reluctant@thetable (03-10-2013), yorkshireste (03-14-2013)
Old 03-11-2013, 08:36 AM #5
fbodgrl's Avatar
fbodgrl fbodgrl is offline
Member
 
Join Date: Dec 2012
Location: Eastpointe, MI
Posts: 259
10 yr Member
fbodgrl fbodgrl is offline
Member
fbodgrl's Avatar
 
Join Date: Dec 2012
Location: Eastpointe, MI
Posts: 259
10 yr Member
Default

I've had a tens unit for a few years. I got it prior to any of my surgeries for my nerve entrapment... prior to the RSD diagnosis. Mine is in my arm. I have also used it for my shoulder and neck which gets tight and painful. I find it has helped to a degree when it is on, but when I stop it the area feels weird. I wish I could come up with a better description than weird!

I rarely use mine. To me it ends up being more trouble than it is worth and has no lasting relief.
__________________
Zookeeper
~Shelly~
fbodgrl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
yorkshireste (03-14-2013)
Old 03-25-2013, 12:05 PM #6
mollymoo123 mollymoo123 is offline
Junior Member
 
Join Date: Mar 2013
Posts: 48
10 yr Member
mollymoo123 mollymoo123 is offline
Junior Member
 
Join Date: Mar 2013
Posts: 48
10 yr Member
Default

Im glad i read this because i was looking at buying one but wanted a little info on them first. I might run it by my pt before rushing out to buy one.
Im in the Ill do anything stage. I did just buy a hand warmer that plugs into my computer
Thanks again
mollymoo123 is offline   Reply With QuoteReply With Quote
Old 03-25-2013, 12:50 PM #7
Nanc's Avatar
Nanc Nanc is offline
Member
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Nanc Nanc is offline
Member
Nanc's Avatar
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Default

I have never been able to tolerate a TENS unit on any of my affected areas, it actually made me worse as did the physical therapy...but that's just me.
Nanc is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
c5-6 flattening cord in agony vinny19 Spinal Disorders & Back Pain 8 01-23-2013 09:19 AM
Can anyone with ATN relate to this? Please help, I'm in agony! r0xmyface0ff Trigeminal Neuralgia 6 09-22-2012 01:47 PM
Toe cramps! Agony!! DizzyLizzy The Stumble Inn 4 10-12-2011 06:32 PM
symptoms issues, agony bruegger84 General Health Conditions & Rare Disorders 11 05-17-2011 05:17 PM
TENS Machine cabot8266 Spinal Disorders & Back Pain 2 12-21-2006 08:36 AM


All times are GMT -5. The time now is 06:46 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.