[kijo]

Hello all I was hoping to see if any of you know of any good Drs that treat Crps in the Panhandle of Fl.
Can be Panama City Fl to Dothan Al.

I was diagnosised by my 4th dr which is a Pain managment dr.
He wrote Probable resolving right foot complex regional pain syndrome.

I hurt my foot the very beginning of OCT. Never got a diagnosis until this last dr which I went to on March 12th.
I am planning on going to Dr just got the authorization for a 2nd opinion to one that says they treat this alot and thought it might not actually be crps after talking to them on the phone.
So hubby said can't hurt to get second opinion.

Honestly I don't know who to trust when they say they treat this and know how.
But this Dr that I am going to for a second option is acutally on RSDSA list so hoping this makes him a better option.

The orginal injury was from my foot being asleep and I stepped on the top of it.
Primary took xrays which showed it wasn't broken so sent me to podiatrist , first one did nothing but told to ice, walk on it and come back in a month IF not better and would do MRI then. So didn't have much faith in him so asked to see another. Second podiatrist did more exrays said it wasn't broken but was going to treat it as a break and possible torn ligaments. Didn't seem to care much even when I mentioned coloring of my foot.
Said it could be rare issue but I wasn't sweating so dismissed it. Which I think now that he was thinking crps then but didn't know enough about it.
I went to him twice and he wasn't doing anything to help so asked to see another dr.
This one was a bone and joint specialist that took a MRI and said nothing was wrong with my foot as far as his specialty was concerned but that there was obviously something wrong with it so I needed to go to different dr and see if they could figure it out. This is 5 months into it now.

So thats how I got to the Pain Management Dr that gave me diagnosis.
He actually had it in his ankle.
He wants me to have a 3 phase bone scan which I have cancealed til I get a second option.
I am not sure how much faith I have in him due to the fact he said I could ice it and that getting an IV for the bone scan can't spread it which are both things I have read that aren't good.
I just talked to the therapist he wants to send me to and she said to ice swelling in knee.
So not sure what to make of this.

Anyway I am by no means as bad as most of you all. I have never had it be hot or pain you all discribe. Its always been cold so I try to keep it warm. The pain I have had I've taken tylenol or advil for. I did do ice and ice baths in the beginning cause I really didn't know what was wrong.
I was on crutches for the first 6 weeks which I walked on it some and then was given a boot to walk with for another couple months or so until the boot started making it more sore then went back to crutches and walking some on it.
It swells and changes color IF I am on it to long or have it down to long but once I put it up the color comes back and swelling goes down.

I have been messaging it with St Johns wort oil usually once a day but think I might do every other day now. I soak in epsom salt baths if my feet hurt. I know I sometimes take to hot of showers and soaks and am trying to do milder ones.
I have been using lavender oil rubbed on the bottom of my feet to help with sleep and pain at night IF I have any.

I have been walking on it since last drs visit since he said to WALK on it. My foot joints above my toes are stiff but getting better as I have started trying to massage them, flex and stretch them.
My foot will swell along with ankle and now knee since I have been walking on it so much more so am trying to slow down a little on how much I am on it.

I am not totally postitive that I have the crps now. I am hoping its not of course but I really think it probably is.

When I first started reading about it I completely FREAKED and OVER STRESSED for several days. I absolutely felt like CRAP those days. Felt like I was coming down with something and ached all over.
Legs and knees were hurting for more walking. Shoulders ached something awful.
But now I am doing better and things have settled down some what.

Anyway was just hoping someone might know a Good Dr around me that actually knows what hes doing.
Please let me know if you do.

I am not sure IF I just had a very mild case of it or if its not actually what I have OR if its my immune supplement I take that maybe helped keep it from getting to bad.
Not sure but what I really want is to figure out for sure whats wrong and work on fixing it and then work on keeping it from Ever happening again IF at all possible.

Thanks so much for listening to me and I look forward to hearing back from you all ESP anyone who can recommend a Dr.
I Hope this finds you all feeling a little better and without pain!
kijo

[CRPSsongbird]

Sorry to say welcome under the circumstances! lol Never fun to get our diagnosis! Be glad you are in Florida there are some of the BEST clinics in that area. Here are a couple of link for information I have found useful and a link to a few cof the best clinics in Florida!

http://www.rsdhope.org/

http://www.rsds.org/2/what_is_rsd_crps/index.html

http://www.mayoclinic.com/health/com...ndrome/DS00265

as far as treatment clinic in your area (i think) the first one is one of the top research centers in Florida

http://www.rsdhealthcare.org/


http://www.healthgrades.com/group-di...enter-c9fbe52f

http://www.rsdrx.com/


I hope this helps! Never hesitate to asks questions big or small here! we are all here to help one another