[AlishaE]

My PM dr only seems interested if I sweat only in my CRPS limb as a symptom of RSD but I have ful body sweating episodes several times a day. It's quite a challenge to deal with a leg that needs warmth and the rest of my body needing air!
Does anyone else have full body "hot flashes" with only CRPS only in one limb?

[alt1268]

My sweating comes from when my breakthrough meds are coming out of my system. Before that I it was menopause. My foot is 95% cold vs. hot. At first it felt cold but was hot. Recently I noted that it feels hot but when I touch it its cold. Just messed up.
I don't think you should be judged by one symptom. I fight with my attorney over my toenails. they still look fine.
I also read on the rsd foundation that we can have some of the same symptoms but we can also have differnent ones but the first symptom is pain, then sensitivity. etc. check it out. (my memory is to short to remember word for word) when your done show it to your dr. if you don't get any where switch dr.'s

[AintSoBad]

I've been having this 'sweat' thing going on for more than a decade. When I get out of the shower, (first a bath, then a shower), and I come out, especially if it's warm, I can't stop sweating. It's nasty!
So, I take the bath and shower as cool/cold as I can stand.
It's better..
I drink an iced water, or whatever.

My doc offered me a med, but, I got too many, I turned it down.

So, I do what I can.
I'll even turn the A/C DOWN and stand in front of a duct!
Drink ice water!

And, I don't' know what else!
I wish I could find an A/P soap!

I do spray my feet, and ears and scalp with A/P.
Then my feet get rubbed down with Gold Bond supreme foot juice.

It's gotta be the best thing you can do for yourself, to cut down on the persp.
I don't know what to tell ya, but find your own way....

P

asb

[Karen67]

Originally Posted by AlishaE

My PM dr only seems interested if I sweat only in my CRPS limb as a symptom of RSD but I have ful body sweating episodes several times a day. It's quite a challenge to deal with a leg that needs warmth and the rest of my body needing air!
Does anyone else have full body "hot flashes" with only CRPS only in one limb?

Hi Alisha, I have the SAME exact problem. 1st I thought it was from my hysterectomy(2006) but this is much, much, different. I am burning up and sweating all over and yet any # of my RSD limbs can be ice cold @ the same time. It is driving me up the wall. My poor husband has to wear a sweater in the house when it is 90 degrees outside because I have the air set on 68. Sheesh... my core temp will be on fire and my toes and fingers are icecubes. I don't think I gave you much help from this post... just wanted you to know I totally understand how you are feeling. Karen

[keep smilin]

Originally Posted by Karen67

Hi Alisha, I have the SAME exact problem. 1st I thought it was from my hysterectomy(2006) but this is much, much, different. I am burning up and sweating all over and yet any # of my RSD limbs can be ice cold @ the same time. It is driving me up the wall. My poor husband has to wear a sweater in the house when it is 90 degrees outside because I have the air set on 68. Sheesh... my core temp will be on fire and my toes and fingers are icecubes. I don't think I gave you much help from this post... just wanted you to know I totally understand how you are feeling. Karen

Hi all...

I totally get it too!! Typically prior to my RSD, full body...I was always cold... Now I feel a rush of warmth and at times, anytime..I drench in water...Others who are not RSD afflicted say... It's menopause but my Dr. Says no way, it IS Rsd and I had a hysterectomy in 2000. I just put in a night from []{} due to sweating.. But cold leg...and foot... Our wiring is twisted...we all describe hay wired body temperatures, all different but all is not normal...Thanks RSD!!

Hugs to all, Kathy

[Russell]

This is very odd to hear for me because I'm totally different. When my body goes in temp fits (that's what I call them) I get freezing cold chills. I even have gone as far as sitting in my car with the heat on and fan blasting while it's 90 degrees outside. All the while only my RSD hand and foot will feel ice cold and the rest of me is warm.
I also lay in bed at times covered up with blankets and be shaking from being cold while the a/c is on in the house because it's so hot out.
Whether it be hot or cold the temp fits are real and such an aggravation to deal with. I guess only we understand them best because they're happening to us...

[kathy d]

Wow Jimbo...You said "When my body goes in temp fits (that's what I call them) I get freezing cold chills." I thought I was the only one that got the cold chills! They get so bad sometimes that no amount of clothes or covers can stop them.

My burning cold (as I refer to it as) turns to extreme hot at 1 AM every morning like clockwork. I can tell what time it is from my foot (initial site of injury). The heat at 1AM starts in my big toe and goes down the row of toes then up my right leg and I wake up after a few hours of sleeping burning hot like lava is all over me. I usually go to bed under six blankets (I counted them last night and then laughed) with pants, socks, shirt and sweater and lately I found the best secret for the chills esp living here in PA...leg warmers!! I had a cast years ago on my foot/leg and the doctor gave me the box of cotton thingies that they put under the cast so plaster doesn't stick to your body and I cut them off like leg warmers. They work great since we just got some cold weather here and my knees and joints were hurting badly. So when the heat hits me at 1:00 AM I can rip the socks off and still have my feet out the side of the covers if needed and my legs don't get warm. But in the morning when the heat is bad I am ripping covers off, clothes off in order to cool my body down. Now, since it is colder here I love it in am because I go out and wear light pants and no socks and the cold air is heavenly. I have learned not to put my hot foot on the cold cement (even though it feels great) because when I come back in the house it is like my foot realizes how cold it was and screams out in pain for hours. I will never do that again. Once we had about 3 inches of snow and I stuck my sockless foot in the snow and thought I had gone to heaven...the snow around my foot actually melted haha. It was crazy and then I went in the house and about hit the roof with pain. Those moments of joy turned into hours of agony...and I learned my lesson the hard way lol.

I had to laugh at the ladies talking about menopause (I've been going through that for several years now (the fun never ends). I hardly ever get hot flashes instead I get what I call "cold flashes" (like Jimbo explained) where the chills run crazy through my body and I cannot get warm again until 1 AM.

I did talk to my neuro doctor about the cold flashes because they got so severe about a year ago that she gave me an iv of quinine and then I took the pills they sell them in the pharmacy. They did help (and are good for leg cramps too). yes, it is the medicine they give to people with malaria. It did work well for the chills but I had to stop using them because I had a reaction to them (can't remember now what it was). I agree with everyone that trying to stay cold when you are hot and hot when you are cold is a full time job. We have to worry about any little draft that might cause a problem. Well thanks for listening to my little two cents.
kathy d

[catra121]

I hate the sweating. I NEVER used to sweat and was always cold. My mom used to joke because even when I played sports I would only "mist." But ever since the RSD pain spread to my upper body I sweat all the time. But the cold makes the pain worse so it's like I can't win. I didn't have the sweating though when it was just in my foot. That's not to say that you can't though because RSD does crazy things to people and we all react differently.

[ballerina]

Originally Posted by keep smilin

Hi all...

I totally get it too!! Typically prior to my RSD, full body...I was always cold... Now I feel a rush of warmth and at times, anytime..I drench in water...Others who are not RSD afflicted say... It's menopause but my Dr. Says no way, it IS Rsd and I had a hysterectomy in 2000. I just put in a night from []{} due to sweating.. But cold leg...and foot... Our wiring is twisted...we all describe hay wired body temperatures, all different but all is not normal...Thanks RSD!!

Hugs to all, Kathy

I think Kathy was spot on when she said, "our wiring is twisted."

My full body temperature issues were just as miserable as everyone else describes. The symptoms abated in January of 2011 after a week of tDCS treatments. Unfortunately, the symptoms slowly returned over a period of months.

Now that I am consistently treating with tDCS I have an 80% improvement in these symptoms. tDCS=cortical reorganization(rewiring or rebooting the brain)=symptom reduction.

[peppermintpatty]

Originally Posted by Karen67

Hi Alisha, I have the SAME exact problem. 1st I thought it was from my hysterectomy(2006) but this is much, much, different. I am burning up and sweating all over and yet any # of my RSD limbs can be ice cold @ the same time.

This is me exactly. I get horrible sweats; I had such a rough night last week that my husband had to help me change pajamas *four* times. And I don't mean just a little either, I'm talking soak your clothes and the sheets type of sweating.

The odd thing is that I don't get these all the time, and invariably, when I get them, they are either preceded or followed by significant all-over body aches.

I'd be really curious to know if this is from the CRPS. I had a doctor suggest lupus the other day which seriously scared me; he also suggested that I see a rheumatologist.

Right now, I'm waiting for my spinal cord stimulator implant which I'll get next month. After that, we'll see. If it's still a big issue, I will follow up with my family physician to see if I need any additional testing.

I'm glad at least to know that I'm not the only one dealing with it, but I am sorry that you have to deal with it at the same time.