Dear Karen..

Do you want me to find the neuro/ PM that placed the Prialt pump? I think it was at John Hopkins univeristy hospital - but I am not from the US so not a specialist in where it is.

Prialt is a very new drug and very few people have been placed on it - i know that with the person I know who had it they had a VERY BAD reaction to MORPHINE PUMPS but they had a great reaction to the Prialt - so could be worth a go??

I'm really sorry about the food tube - that must be really hard - I know several RSDers on them and they seem horrible! However, from everything that you have gone through you must have been a fighter and I reckon you'll be there at your sons graduation!! no problem!

We are all here for you - keep going with the Dragon - that's what I use most of the time and what I am using now - it is fine apart from it doesn't like some long words.

I have been at university since October and I am studying psychology. I shouldn't really of shared my story with you as you are going through so much - I just wanted to say that I can empathise with some of your situation and to never give up hoping - as Broken Wings said.

Sending you lots of love and hugs

Frogga xxxxxxxxxxxxxx