My MP is going to ask parliament to debate our situation/condition after the Eater break, on his own he is unlikely to succeed so if you want the government/health dept to do something to prevent others going though what you have please e-mail your MP today.
Tell them the name of this condition. That it is the worlds most painful incurable one and as much of your story as you are comfortable with, at the very least tell them how long and how many doctors before you were diagnosed. That 95% of the NHS have never heard of this condition but according to figures in a paper published by the Royal College of Physicians last May there maybe 480,000 sufferers on the UK and less than 20,000 have been diagnosed
Ask them to read these links and spare 5 mins to watch the video.
http://www.rsdhope.org/crps-symptoms.html
http://www.rsdhope.org/mcgill-pain-i...in-ranked.html
http://www.youtube.com/watch?v=MviVcjWZDts

Tell them that Iain Stewart is going to call for a debate on this after Easter and ask, beg , plead whatever you feel is appropriate that they contact him ASAP to offer their support in anyway they can.
Please don’t think I’ll do it later do it right now.
Kevin

Done - emailed Cath McKinnell. She covers slightly out of my area but has helped me in the past and is ever so nice. She also gets onto things quickly. I will let you know what she says.

Anyone else going to help

Will I still be in time?

Yes every MP we get involved puts more pressure on the Governemnt

Cath McKinnell passed it on to my area MP who has promised to look into things, so that's a result at least.

Thanks Kathy

I've emailed my MP so here's hoping he does something.

Thanks everyone helps