I was 24 when it happened. I am almost 34 now. We live in Clovis, NM. The stinky armpit of NM. Lubbock, Tx is about an hour away. So I don't have access to a lot of the military hospitals or VA clinics that might be having good success dealing with this diagnosis. I am going to my PCM in the 18th and am going to ask him if he will fill out the form for a handicap placard over here. I already know that I am not going to get better. I am only going to get worse. My right knee is now starting to hurt. Now its a matter of trying to get DRs that listen and don't automaticly think I only want pain meds.

Wow what a small world it is:) I am at Kirtland. I have a great team at UNM. PM me if you need their info. Tri-care will send you here on medical tdy. I love my providers.

PM me and I can send you my phone info and go into more details. There is so much to tell.

They keep sending me to Lubbock or Portales here. I wish they would send me to a DR in Albuquerque. I have a brother and sister in law and their kids for my son to play with while I'm at the DR lol. When I go to the DR tomorrow I am going o ask him if he will see about getting me to another DR that knows more about CRPS than my PM does. He's still going on the old info that the sympathetic block will cure it.

I am PMing you all the info I have. The Drs names and such.I must say I LOVE my physical therapist, I have made more progress with her than I ever thought possible. She is incredible. I highly advise going to her.

[QUOTE=S's Aunt;975439]Many military hospitals have a therapy they use for Phantom Limb Pain which has had good results for many people with crps. It is called Calmare or Scrambler Therapy. You might check to see if you have access to that.

Forgot to say that the doc that we saw for it with my niece mentioned successfully treating several people who have had crps for many, many years. My niece went from a pain level 8/10 to a zero. Look at the threads for Calmare Therapy for more info.

Good luck!

Hi Allanira,

I don't know how the military medical system works, or what branch you were in, but when I looked at the list of locations of military hospitals that had calmare machines, there was one Army Hospital in San Antonio Texas that had one. San Antonio Military Medical Center (formerly Brooke Army) at Fort Sam Houston, TX. If you had access to that, it could really be worth a try.

Good Luck!

Note to moderators: Not sure if I'm allowed to mention the Military Hospital by name, sorry! Thanks for fixing it if I'm not supposed to :-) I'm still learning about the posting thing...

They stuck us in Clovis, NM after being at Holloman which was close to William Beaumont Army Medical Center in El Paso. Its now a 4 hr trip to Alamogordo and Holloman and another hour from there to El Paso. The VA is attached to that medical center and they were not so helpful. Kept telling me that because I didn't have a surgery at their center then I didn't really have it even though I have an 8 inch scar plus all the medical records (which they were going to shred if I gave it to them) and the xrays from it. I would gladly go back to that medical center because I have family and friends still in Alamogordo that I could stay at. Plus I could go to my favorite reptile store in El Paso lol. Its just rotten that I am over here now instead of down there were I knew my way around. I don't know any of the hospitals or VA treatment facilities in Amarillo or Lubbock. I was going to an OS in Lubbock but he REALLY irritated me.

(Moderators don't know if I am allowed to put in the treatment facility but please tell me if Im not. I will gladly remove it.)