Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-27-2015, 12:56 PM #1
shelbie4u shelbie4u is offline
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Quote:
Originally Posted by Taywesty View Post
what state do you live in? is this a possibility everywhere?
Hey Tay, Im in Calif. They deliver right to my door. I go online to see their menu. There are many dispensaries (stores) here but I stay with the same one. The employees are very kind and helpful. They all know my story (because Im still freaking out ) I feel the need to tell everyone about this horrible disease.

The brain is a powerful organ. I live my life differently now. I have to, to survive. Find out things that make you happy. I breathe, stretch slowly while taking a slow deep breath, swimming in warm pools is huge for me, think of warm calming thoughts and laughing helps me soooo much.

2 or 3 days a week I take norco. Not every day. It gives me energy to do chores. I take trazadone at night to sleep. I take piece of chocolate everyday normally around 11:00 am to help me thru the day.

God put this plant on the earth for a reason. It is a sin that it is not available for everyone to try. Its like dangling a carrot in front of you. You can get some relief , but the government is sooo behind in its healing properties.

I hope and pray that they will find a cure for us. Remission is our only hope right now. I will never give up. Find your happy place it will help you.

Shelbie
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Old 04-27-2015, 10:48 PM #2
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Quote:
Originally Posted by shelbie4u View Post
Hey Tay, Im in Calif. They deliver right to my door. I go online to see their menu. There are many dispensaries (stores) here but I stay with the same one. The employees are very kind and helpful. They all know my story (because Im still freaking out ) I feel the need to tell everyone about this horrible disease.

The brain is a powerful organ. I live my life differently now. I have to, to survive. Find out things that make you happy. I breathe, stretch slowly while taking a slow deep breath, swimming in warm pools is huge for me, think of warm calming thoughts and laughing helps me soooo much.

2 or 3 days a week I take norco. Not every day. It gives me energy to do chores. I take trazadone at night to sleep. I take piece of chocolate everyday normally around 11:00 am to help me thru the day.

God put this plant on the earth for a reason. It is a sin that it is not available for everyone to try. Its like dangling a carrot in front of you. You can get some relief , but the government is sooo behind in its healing properties.

I hope and pray that they will find a cure for us. Remission is our only hope right now. I will never give up. Find your happy place it will help you.

Shelbie
I have my happy place, but I am afraid with the progression of this disease I won't be able to go there anymore. It is a camp for people with disabilities, where I was working long before I got this disease. I take care of and get to play with people of all ages with disabilities. However the job is very demanding, and I have to provide 24 hour care to roughly 4 campers. I love it to death, but I am on my feet non stop.

I am in Ohio, so the medical marijuana is not an option here, maybe one day :/
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Old 10-14-2015, 02:50 AM #3
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Quote:
Originally Posted by Taywesty View Post
I have my happy place, but I am afraid with the progression of this disease I won't be able to go there anymore. It is a camp for people with disabilities, where I was working long before I got this disease. I take care of and get to play with people of all ages with disabilities. However the job is very demanding, and I have to provide 24 hour care to roughly 4 campers. I love it to death, but I am on my feet non stop.

I am in Ohio, so the medical marijuana is not an option here, maybe one day :/
It should be legal soon!! I'm in Ohio as well!! But (doesn't work for everyone) but CDB oil is the best for it!!
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Old 03-20-2015, 08:06 AM #4
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Medical marijuana is very effective for RSD/chronic pain.
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Old 04-17-2015, 07:08 PM #5
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It just makes you not care, eat too much and sleep better, If you have gasteoparesis it would probably help. They make CBD strains that have very little THC and has shown to help, didn't help me. They are selling a CBD vaping oil that's supposed to be legal and not show up on a UA. You can probably google it on line and it is also available in a transdermal patch but I was told you would test Positive. Personally it's not a solution for me. If its addiction to opiates vs MJ I would chose MJ. I would never smoke it. Vape or edible. I did not find it to help "burning nerve pain". In fact it increased it the next day as many meds do to me. You need to remember you need to be in a legal state and MOST pain management doctors and primary care doctors won't even work with your pain or health issue if you use it. That makes it a no go for me.
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Old 10-13-2015, 09:30 PM #6
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I smoke and I have CRPS and for me personally. It helps ALOT for me. But only depending on the strain I get. The strains with the highest cbd is what helps pain. The THC is what gets you high so higher cbd the less pain. Good luck.
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Old 10-14-2015, 02:42 AM #7
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Indica is one of the strains listed for pain. A few weeks ago when I was researching the value of some of my antique bottles I noticed a pristine one for sale that had raised lettering :"indica cannabis." Evidently (sigh) you could just buy it at your local druggist.

Jenna please tell us what strains helped you.
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Old 10-14-2015, 02:52 AM #8
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Quote:
Originally Posted by BioBased View Post
Indica is one of the strains listed for pain. A few weeks ago when I was researching the value of some of my antique bottles I noticed a pristine one for sale that had raised lettering :"indica cannabis." Evidently (sigh) you could just buy it at your local druggist.

Jenna please tell us what strains helped you.
Hey!! The strains that help me the most are grand daddy purp, and cotton candy kus . Both amazing for me!! But everyone is different
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Old 10-14-2015, 12:10 PM #9
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I have had success with it in the past when I was dealing with severe arthritic pain, I found that the kush strains, grand daddy purps and white widow worked well for that. As for CRPS pain, I did try white widow a few months ago. It seemed to have the opposite effect. The burning and stinging pain seemed to be increased, unless I made cookies, (by the way, oatmeal cookies do a wonderful job of masking the flavor of the marijuana), but it was costing too much to make a batch that would be effective. Because of that, I no longer use marijuana in any form.
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Old 10-14-2015, 12:29 PM #10
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Default CDB oil

Can anyone give a reputable site where one can get CBD oil that is legal in every state and a brand that works for them if they even have "brands" of CBD oil?
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