Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-14-2015, 02:50 AM #21
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Originally Posted by Taywesty View Post
I have my happy place, but I am afraid with the progression of this disease I won't be able to go there anymore. It is a camp for people with disabilities, where I was working long before I got this disease. I take care of and get to play with people of all ages with disabilities. However the job is very demanding, and I have to provide 24 hour care to roughly 4 campers. I love it to death, but I am on my feet non stop.

I am in Ohio, so the medical marijuana is not an option here, maybe one day :/
It should be legal soon!! I'm in Ohio as well!! But (doesn't work for everyone) but CDB oil is the best for it!!
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Old 10-14-2015, 02:52 AM #22
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Originally Posted by BioBased View Post
Indica is one of the strains listed for pain. A few weeks ago when I was researching the value of some of my antique bottles I noticed a pristine one for sale that had raised lettering :"indica cannabis." Evidently (sigh) you could just buy it at your local druggist.

Jenna please tell us what strains helped you.
Hey!! The strains that help me the most are grand daddy purp, and cotton candy kus . Both amazing for me!! But everyone is different
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Old 10-14-2015, 12:10 PM #23
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I have had success with it in the past when I was dealing with severe arthritic pain, I found that the kush strains, grand daddy purps and white widow worked well for that. As for CRPS pain, I did try white widow a few months ago. It seemed to have the opposite effect. The burning and stinging pain seemed to be increased, unless I made cookies, (by the way, oatmeal cookies do a wonderful job of masking the flavor of the marijuana), but it was costing too much to make a batch that would be effective. Because of that, I no longer use marijuana in any form.
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Old 10-14-2015, 12:29 PM #24
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Default CDB oil

Can anyone give a reputable site where one can get CBD oil that is legal in every state and a brand that works for them if they even have "brands" of CBD oil?
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Old 10-14-2015, 12:50 PM #25
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Can anyone give a reputable site where one can get CBD oil that is legal in every state and a brand that works for them if they even have "brands" of CBD oil?
Do not buy it online honestly its never good. Since its legal in most states now. If you go to a vape shop or a smoke shop they usually have them forvape pens
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Old 11-03-2017, 06:27 AM #26
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Default Thanks all for posting this content

Hi Guys I live in the backyard of the world - Australia where laws change so slowly. This is encouraging.
I am sorry I haven't been well enough to visit for sooooo very long but having had this horror of a life for 15 + years I am at wits end. Oh and apologies for typos.

Each year when we go into our long hot summer I go into a fear state of the heat and life itself - keeping food in the house is so very hard. I hibernate in the A/C house but the breeze from the unit puts me through hell and then there is the thermal shock which no one here can comprehend. I "walk" around in utter melt-down actually wet all over with pain sweat should I have to go out in the daytime and people are scared to be near me as I look so very ill.
For those who do not know as it's been so long since I posted, I have severe CRPS R knee / lower leg with the most horrid untreatable peripheral neuropathy with accompanying pyrexias etc.

You all know this story so to cut it short this MMJ is really something I want to try MMJ in one form or another but I cannot see a way around the legal speed humps.
We are both close to retirement age now and for real reasons I cannot go sown the illegal track as it could jeopardise our financial future and my marriage but you have given me the faith that some sanity that may come in time.

As with many here NONE of the usual drugs have helped including intrathecal pumps, localised stimulators and all the gambit of drugs available on Rx here and herbals etc.

The last time I went to my GP our authorities system (Govt pen pushers) cut back on my prescribed number of Endone to 5 mg per day so I have been totally miserable in pain beyond my belief and my GP is stuck in the company rut of trying to make me check for those issues that might onset with age - I think there is a bonus system for pathology in play here.

Frankly I don't care as my "good" leg is now grinding bone after having to support the CRPS affected leg for these last 15 or so years .....all I want is Quality of life I DONT CARE IF I DIE with the life I write of without some quality to speak of. My dad is still going, yet with sudden onset dementia at 91 yo. so it this not fill me with confidence. His brother is older. I am sadly from long-lived stock. As my CRPS resulted dodgy surgery from repair of a torn meniscus after a work accident I am not keen for more surgery. Cutters cut after all. I have little trust of our medical system.

Again thanks for the inspiration to pursue this MMJ issue as much as I can. It is the only light at the end of this long tunnel and I thank you all for your constructive and encouraging comments.
These are the most enlightened experience-based writings I have seen on the subject.
All the best to ALL of you good folk.

Last edited by Auberon; 11-03-2017 at 06:35 AM. Reason: Missed a point
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Old 11-03-2017, 09:38 PM #27
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WOW, I'm so sorry you are suffering so much. Have you read about the newer treatments? The neridonate (sp) is showing hugely positive results in many patients. I don't know if that is something you can get down there. What about Ketamine?
My doc just put me on buprenorphine which, along with the lamictal and cymbalta, is keeping things more reasonable (though I hear you on the breeze from AC/fan ouch!). Most docs don't do buprenorphine, none of my previous docs even MENTIONED it.
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Old 11-05-2017, 05:45 PM #28
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Originally Posted by Becca71 View Post
WOW, I'm so sorry you are suffering so much. Have you read about the newer treatments? The neridonate (sp) is showing hugely positive results in many patients. I don't know if that is something you can get down there. What about Ketamine?
My doc just put me on buprenorphine which, along with the lamictal and cymbalta, is keeping things more reasonable (though I hear you on the breeze from AC/fan ouch!). Most docs don't do buprenorphine, none of my previous docs even MENTIONED it.
Becca, I am on Neurontin (gabapentin) & buprenorphine (both patches and sublingual tablets for breakthrough pain/pain peaks).

They tried Fentanyl pain patches on me first, but I had horrible side-effects, and in Belgium there is only one other pain patch on the market, so... the choice was quite obvious. And these do well with me. I have been on them since 2004, still the same dosage and everything.
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=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 11-05-2017, 10:45 PM #29
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The buprenorpine patch isn't for breakthrough pain, it even says that on the box, but probably that isn't what you meant. In fact I felt like the best part of the patch, and now the once a day sublingual is that there aren't peaks/valleys in the pain coverage. My doc told me that the full pill is like 4x as strong as the 20 mcg patch. I decided to only do 1/2 pill at first based on that, because WOW. (I was weaning off the Methadone and onto a patch, so once off the methadone he put me up to the pill).
I think it is interesting, though, in the states no one mentions it at all.
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