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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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11-03-2017, 09:38 PM | #1 | |||
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WOW, I'm so sorry you are suffering so much. Have you read about the newer treatments? The neridonate (sp) is showing hugely positive results in many patients. I don't know if that is something you can get down there. What about Ketamine?
My doc just put me on buprenorphine which, along with the lamictal and cymbalta, is keeping things more reasonable (though I hear you on the breeze from AC/fan ouch!). Most docs don't do buprenorphine, none of my previous docs even MENTIONED it. |
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11-05-2017, 05:45 PM | #2 | |||
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Quote:
They tried Fentanyl pain patches on me first, but I had horrible side-effects, and in Belgium there is only one other pain patch on the market, so... the choice was quite obvious. And these do well with me. I have been on them since 2004, still the same dosage and everything.
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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11-05-2017, 10:45 PM | #3 | |||
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The buprenorpine patch isn't for breakthrough pain, it even says that on the box, but probably that isn't what you meant. In fact I felt like the best part of the patch, and now the once a day sublingual is that there aren't peaks/valleys in the pain coverage. My doc told me that the full pill is like 4x as strong as the 20 mcg patch. I decided to only do 1/2 pill at first based on that, because WOW. (I was weaning off the Methadone and onto a patch, so once off the methadone he put me up to the pill).
I think it is interesting, though, in the states no one mentions it at all. |
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