Hi everyone, was wondering if anyone with crps has had problems with deep ear pain. For example I cannot be around people that are talking, cannot be around music, cannot have the tv at a normal level. If I talk for more than 10 minutes non stop the ear pain get worse. Had ketamine infusions, and stellate block. Ketamine helped alittle. If the ear pain starts to get better and something or someone gets loud the ear pain starts all over again. It's like I cannot do anything normal or be around normal sounds. I am so isolated.
I have not seen any people with the ear problems I have on any site.
I just wish some doctor can get rid of this for me. Thanks

Hi! My daughter has extrememly sensitive ears to noise as well. There is sometimes i can barely hear the things she is saying is too loud. I just took her to an Ent and audiologist to see if there is anything to be done and they said really nothing besides ear plugs and ear defenders. So I had her fitted for swim earplugs, like kids with tubes use. And went to sporting good store and got some ear defenders (like people wear at a shooting range). Those thing brought the level down so well she can go to the movies and we even went to Disney over spring break! Now she is a teen and it does look a little silly to wear ear defenders to the movies and what not, but she is thrilled to be able to go and not add to her pain because of the noise so she thinks it is worth it. She has even worn them in school from time to time.
Hope his helps!

I used to have severe ear pain and no ear infections and had an mri of my ear. I would cup my ear cause it seemed to help the pain. I thought it was coming from my eye pain at the time but I am not sure. I have always been sensitive to noise but even more so now. I tend to wear earplugs and have a fan running to quiet back noise. Not to sound rude but people noise whether it be singing,yelling,gum popping really get to me and make me so anxious. I feel like I have the hearing of a dog almost. From the doctors I have seen for RSD it is very hard to find one who connects RSD to eyes or ear pain. Of course I am not saying this is RSD in your ears but for me I think it was connected. I always fear saying something is RSD and then it not and having even more problems.
Are you on any meds that may impact hearing?

I can relate to your anxiety you get from people talking and complaining about problems,really bothers me.dont like talking on the phone either,that seems to make me feel anxious and adjatated too.i also kinda isolate myself from people family and Friends.i don't mind texting at all,I don't usally answer my phone,except for my wife

For me...certain kinds of noises can flare up my pain but it's not "ear pain"...just my regular RSD areas start to burn and flare up worse. I don't know why this is...but it seems fairly common for RSD sufferers. There are certain sounds that make me worse, and some that make me feel better (not that they help the pain but they calm me down or block out the bad noises) so I have some different playlists on my ipod for those times. Sounds that are really bad for me are things like the vacuum, road work noises, rumbling type noises of any kind, static on the tv, etc.

I couldn't stand noise, listen to music, tolerate the phone ringing, etc. sitting at a red light if a car pulled up with heavy bass thumping would at my pain off in a split second. I do not know what caused the change but about two years ago, I was slowly able to start listening o music. I can't operate everything.though. Calmer, soft voices an melodic music ok, more complex, loud, disjointed stuff, not ok, but sensitivity to sound and smell and vibration or movement is absolutely normal.

Mine sounds more like your's, Catra. Sounds can trigger RSD pain, but I don't feel ear pain.

My RSD is in my neck/TOS area, surrounding tight muscles have caused occipital neuralgia, so it's my neck up into the back of my head that deals with pain from annoying and unexpected noises. For me, it's not so much about the actual volume of the sound. I could be watching tv or listening to music with my teens, with the volumes UP and I'm okay, it's the unexpected dog barking at a car going by that is the noise that overwhelms me and causes the flares. Even one of the kids talking to me while we are watching tv can trigger the pain. I feel like I KNOW that sounds are coming from the tv, it's the unexpected additional sound of a kid that startles me/overwhelms me.

Hi. Sorry for the late reply. I've been really busy with work.

I am very sensitive to certain sounds but this predates my development of CRPS. You know how, if you close a bottle of a carbonated drink almost but not quite all the way, it makes this noise as the air escapes from the bottle? I can hear that from across a room and it drives me nuts! Soft sounds like that are so loud to me. Well, maybe not loud but impossible to ignore; they pull my focus in this odd way.

To give you a bit of background, I also have migraines with aura and some strange touch sensitivity. I find a gentle poke really painful and find the vibrations from using an ordinary pencil uncomfortable (both long pre-date my CRPS).

I suppose I am just neurologically odd.