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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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05-04-2013, 06:06 AM | #1 | ||
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Just a thought tho, your thread title narrows the field a bit - might be an idea to rename it if poss to "Research info please - where did your RSD/CRPS start?" Thanks. Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . Last edited by Brambledog; 05-04-2013 at 06:09 AM. Reason: New thought lol :) |
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05-04-2013, 01:51 PM | #2 | ||
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Elder
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Ya know, this sounds like real research.... Maybe we should gather all this information and pass it on. I am very much surprised at how many of us develope PN or RSD in left foot and calf. I had no idea. To whom can we submit our small but very real situations to? ginnie
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05-04-2013, 01:57 PM | #3 | |||
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Just a very important FYI ......our guidelines and terms of use strictly prohibit research for publication etc to be conducted on posts here, or to solicit members for research.
It is a fine line and so a member interested in researching information to help themselves or others is ok...but providing information to an "official" researcher or for a physician to use for publication would be a violation of our terms of use/ guidelines as well as a possible breach of copyright here.... I mention this as the discussion has gone from one where it was a member expressing personal interest based on something their physician may have mentioned to now taking a bit more of a formal research turn, which is not allowed. This is not to inhibit new research but to maintain the mission statement of these forums, where members should feel safe to discuss their health issues without concern that their info is going to be used without their permission etc etc. The ramifications of formal research go beyond the scope of what I can post here...and so I do caution members not to cross that line please.
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | ginnie (05-04-2013) |
05-13-2013, 07:03 PM | #4 | |||
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Updated info:
Lower left : 13 Upper left : 2 Lower right : 4 Upper right : 2 wow, those are definitely statistically significant numbers, although the sample size is low. *edit* My daughter also brought up the handedness relation - she suggested *edit* should track if the people that had it in the left foot are also right-handed. Last edited by Chemar; 05-14-2013 at 06:01 AM. Reason: NeuroTalk Guidelines/Research |
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05-04-2013, 09:30 AM | #5 | |||
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Quote:
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"Thanks for this!" says: | ginnie (05-04-2013) |
05-05-2013, 09:24 AM | #6 | |||
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Mine started after surgery for median nerve entrapment. Left arm/hand.
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Zookeeper ~Shelly~ |
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"Thanks for this!" says: | ginnie (05-06-2013) |
05-08-2013, 06:46 PM | #7 | |||
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New Member
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That is interesting because mine started in my left foot and spread diagonally(sucks)- I've read about a lot of people who have indeed said it started in the left foot. Anyone have any idea as to why that might be? Maybe the left side of the body is more vaunrable than the right because more people are right handed than left and everything is made for the right side, so the left side might be left vaunrable to other things that the right might not? I know that sounds weird, but if you think about it, it makes sence- (I.E: there are more accidents with left hand turns than right.) Or, like you said, the nerves(& Muscles) could be the answer themselves- they might control a specific body task on the spinal colmun and the mutation of the CNS (i've read about) that occurs with CRS/RSD makes it worse or spread. I know that things like sleep can be effected, like, one place I read said that RSD mutations of the CNS(Centeral Nerovous System) cause the person to be unable to go into full R.E.M sleep. R.E.M sleep is Rapid Eye Movement part of sleep when you dream and it consists of a "V"(if you will) of a full 90 minute cycle- 45minutes till the center of the "V" and 45 minutes to get out of the "V". Well, if the CNS is mutated and doesn't allow you full R.E.M sleep, that means that you are not reaching the deepest part of sleep(the center point og th "V") that a person needs to dream and function, then you are not getting a full nights sleep. This may also have an effect on where it goes in the body (besides how you were injured/got RSD) because the mutation may happen right away- I don't know, but it's a theroy. I hope it makes sence. |
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05-09-2013, 12:52 AM | #8 | ||
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My rsd started the exact same way as yours FYI. Torn tendon screwed, didn't heal, pulled the screws, even worse. Now I have an awful foot drop and full body. They are also testing for ms. It's dumb in my opinion because they can't "definitely diagnose" without an MRI. I can't have one so why bother with more procedures and tests. I'm just tired of all the tests. Leading back to..rsd. I have the worst balance issues ever!! I can't walk 2 feet unassisted. Sad, I'm only 38.
How are you doing? Do you have worsening? I'm going to go back and read since our dx is about the same. Take care and wishing you low pain!! |
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"Thanks for this!" says: | ginnie (05-09-2013) |
05-13-2013, 01:31 PM | #9 | ||
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Junior Member
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Left foot for me, after a simple stress fracture.
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05-13-2013, 01:34 PM | #10 | ||
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Elder
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The more people that state something like left foot fracture etc, the more weird it gets. I had three torn tendons and went and got two ganglion cysts removed. That did it for my left foot too. Sorry all of us have go through it. I am on B12 shots and it seems to help. Pain meds too. Take care Jenn. ginnie
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