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05-29-2013, 07:45 PM | #51 | ||
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Elder
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Try lidoderm patches. Good for the pain, but hard to remove. actually hurts to remove, but they do bring a measure of relief for the 12 hours on. I am not sure I would use a 10's unit. Also there are some compounded creams that work a bit. ginnie
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05-30-2013, 01:35 AM | #52 | |||
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It's just so AWFUL when the RSD comes on because of doctor error!!!
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"Thanks for this!" says: | allentgamer (06-02-2013) |
05-30-2013, 09:23 AM | #53 | |||
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Senior Member
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Quote:
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05-30-2013, 06:08 PM | #54 | |||
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I'm packing to go on vacation (camping at Yosemite National Park, one of the most beautiful places on earth!) and will update when I get back. Or if anyone else wants to do a count, go ahead Thank you all for sharing, and see you when I get back!
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06-01-2013, 12:16 AM | #55 | |||
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So what is the finally tally? Does anyone have a theory why the left foot?
kathie |
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06-01-2013, 08:27 AM | #56 | ||
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Elder
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Hi, I am not sure of the count right now. I will go back through this thread and try to figure it out. We had a count mid-way through. I do wish there was something we could do with the information we got. WE are not allow to submit any kind of polls, or research to any facility from NT. It has to do with privacy issues. This was all for our own benefit. It does seem like that left foot is the bugger. Take care of yourself. ginnie
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"Thanks for this!" says: | Brambledog (06-01-2013), cait24 (06-01-2013) |
06-01-2013, 12:07 PM | #57 | |||
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I loved to hear the theories on why the left foot. If we knew why maybe it could get to the root cause and a better way to treat or prevent it.
kathie |
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06-01-2013, 12:52 PM | #58 | ||
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Elder
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I think PN from my own observation is from auto immune malfunction. I have 4 distint auto immune diseases, alopecia universalis, DDD, DJD, Arthritis (bad form) and Barretts. I was told they are all auto immune problems. Then of course the left ankle desiced to act ______y. My tendons in that foot tore, and that started the PN. I too am interested if others have a variety of auto immune problems. I also started with Epson Barr syndome at a young age. (spelling on that). People who have crohns disease which is an auto immune over reaction, seems alot have PN too. There has to be some connection to all of it. Maybe it would serve to ask folks if they have other things, besides PN, before the PN kicked in....That would give us more information for our own studies. B12 seems to help PN, I wonder if the lack, or low B12 during ones life plays a factor. A child, isn't unually checked for B12 levels.
Lets ask each the rest of this thread, if others had a virus, or problem that pre-ceeded this, other than injury. I care about all of us. The PN is lousy to have, thats understated.... My thoughts and prayers to all of us. ginnie |
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"Thanks for this!" says: | cait24 (06-01-2013) |
06-01-2013, 05:26 PM | #59 | |||
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I do. I have/had RA prior to RSD.
My original problem was a nerve entrapment at the elbow and then at the wrist.
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Zookeeper ~Shelly~ |
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"Thanks for this!" says: | ginnie (06-01-2013) |
06-01-2013, 08:17 PM | #60 | ||
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Senior Member
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I'm part of another RSD "common theme dx" group.....there is a bunch of use here at NT with (starting with.....) TOS, RSD, and fibro
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. Gee, this looks like a great place to sit and have a picnic with my yummy bone ! |
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