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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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04-30-2013, 07:01 PM | #1 | |||
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I was talking with the doctor that did the Calmare treatment on my daughter and on me, and he mentioned that in his experience, a large majority of people started with a foot injury, and of those people, a large majority of people started with the LEFT foot. Reading these forums, I seem to see a lot of RSD starting in feet, so I thought I'd ask the people here where their RSD started, just out of curiosity. It might even lead to something helpful in treatments - any new information can be helpful. If it really IS a large percentage in the left foot, maybe there's something unique about circulation or nerve wiring or something like that ...
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"Thanks for this!" says: | ginnie (07-31-2013) |
04-30-2013, 09:56 PM | #2 | |||
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Quote:
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Illegitimi non carborundum For he shall give his angels charge over thee, to keep thee in all thy ways. psalms 91:11 |
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04-30-2013, 11:46 PM | #3 | |||
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Hello, pooh_ac! Is your username from Winnie-the-Pooh? I love the original (NOT the Disney) illustrations - they are so lovely. And the stories are so cute! Enjoyable for all ages, IMO.
OK, we are 3/3 as far as left foot (I forgot to put in my own statistics - I had RSD in my left foot after surgery, and my daughter got it in her left foot after a stress fracture). "nurse vs cow" - You need to try to pick on someone your own size!!! My original injury was pretty weird, too - it was mom vs. son-jumping-out-of-truck-into-his-wheelchair-and-it-shooting-backwards-and-hitting-her-foot. My son has caudal regression syndrome, and he has little stubbies for legs. He is very active using his upper body and leg stubbies, and he loved to jump out of the car into his wheelchair while I held it still for him. We did this hundreds of times, and the ONE time when I turned my head right as he was jumping, my foot slipped, and WHAM it shot backwards and hit my foot and blew off the big toenail and tore 2 tendons. I walked on it for a year before they finally found the problem, and then had surgery, and then developed RSD for a couple of months and was on the point of getting my first spinal block when I tore my shoulder (rotator cuff) and had to have shoulder surgery, and the RSD in the foot went away. But nurse-vs-cow sounds funnier Thanks for sharing the info - I hope more people can chime in because I think it's pretty interesting. My daughter was wondering if the people with the left foot as a starting point were all right-handed, because the numbers seemed to be about the same as right-to-left handedness. Are you right-handed? |
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"Thanks for this!" says: | ginnie (07-31-2013) |
05-01-2013, 07:48 AM | #4 | ||
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Oh this made me laugh ironically....
My CRPS started in my left knee after a minor op (sorry it wasn't more glamorous lol!). It then spread to my left foot, and then spread out from my knee to my whole thigh and upper calf. It has also crossed over to the toes of my right foot. My left foot is the biggest problem for me now, although my knee is still swollen, painful and weak, the pain and burning are far worse in my foot. I too have noticed that the foot is a common place for CRPS to affect. Interesting.... Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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"Thanks for this!" says: | ginnie (07-31-2013) |
05-01-2013, 09:22 AM | #5 | |||
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So far we are:
4 for 4 for starting anywhere on left side 4 for 4 for starting lower left limb 3 for 4 for starting left foot |
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"Thanks for this!" says: | ginnie (07-31-2013) |
05-01-2013, 10:16 AM | #6 | |||
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Hello! Mine started 22 years ago in the right side of my face after biting a rock that was in my food at a Mexican restaurant then having major dental work done to repair the damage (lost 3 teeth after root canals and ended up with implants) I hurt my right hand in 2009 and developed it there, it mirrored over to my left hand. Had a venipuncture injury in my left arm and it spread there. Had a spur removed from my left shoulder and it spread there and somehow down my left leg and into my right shoulder. I hurt my right foot Dec 2011 and developed it there, then it mirrored over to my left foot. It has since gone into my abdomen and head
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"Thanks for this!" says: | ginnie (07-31-2013) |
05-01-2013, 12:19 PM | #7 | ||
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My wife's right broken wrist.
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05-01-2013, 01:14 PM | #8 | |||
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My left ankle after my left foot stuck a steel plate at work. General opinion from the docs is that the initial injury was a sprain of my left ankle that turned into RSD, then spread up to my knee and also to my upper body after a LSB.
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"Thanks for this!" says: | ginnie (07-31-2013) |
05-01-2013, 03:15 PM | #9 | |||
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my initial injury is my right ankle, then to right foot and up the leg to calf. Been fortunate spread as been minimal.
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. GOD help me be faithful in the midst of my suffering. Alt1268 |
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"Thanks for this!" says: | ginnie (07-31-2013) |
05-01-2013, 04:46 PM | #10 | ||
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Mine started in my right foot after a fusion surgery on my big toe.
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"Thanks for this!" says: | ginnie (07-31-2013) |
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