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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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05-19-2013, 07:01 PM | #1 | |||
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Has anyone had a series of STELLATE GANGLION BLOCKS?
After 8 years of harassing the lovely ins company 3 of 6 consecutive have been approved. 1st one done last week and my neck feels like it now needs Botox, lidocaine and steroids. Serious headache from the stiffness. It did help with the upper RSD for a few days. Now Im a tad skiddish to continue. Next is Tuesday and Im rethinking but feel I need to go thru the process Lumbar blocks need to be done as the RSD has graduated to my left leg, foot and now right leg and foot which I am having a difficult time walking and standing
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Cyndy . color="Black">Slowly I turn, step by step, inch by inch *The 3 Stooges . |
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05-19-2013, 08:34 PM | #2 | |||
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Hi Cyndy! I was diagnosed with RSD 22 years ago and went through a series of SGB then and they helped me greatly...actually put me in remission for many years. In 2009 I hurt my hand in 2009 and the RSD started spreading like wildfire. I tried the blocks again, but didn't have much luck this time around. I believe they didn't help because it was too late...took too long for a correct diagnosis.
Good luck! Nanc |
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05-19-2013, 11:35 PM | #3 | ||
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"Thanks for this!" says: | Nanc (05-19-2013) |
05-20-2013, 04:23 AM | #4 | |||
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I'd like to hear a little more about these, since I've never heard of them. Are they for a particular affected area, or can it be for any affected area?
I'll google it, too, but it's always good to hear from people with experience with them. |
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05-20-2013, 11:02 AM | #5 | |||
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So happy to hear they have helped you so much! I had such a great result from them the first go around that I was pretty adament about having them the second time around. While I was waiting for insurance approval for the SCS's, I had the dr do another series of SGB's and lumbar blocks...I wanted to exhaust everything before the surgery.
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05-20-2013, 11:16 AM | #6 | |||
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"A stellate ganglion block is an injection of local anesthetic in the sympathetic nerve tissue of the neck. These nerves are a part of the sympathetic nervous system. The nerves are located on either side of the voice box, in the neck." Most drs these days use fluoroscopy (x-ray guidance) and some use mild sedation. Back in 1991, they didn't use either one of those. When I had them, they were for RSD in my upper body. The first go around was in 1991 when I only had it in my face. The second time around was in 2010 for my hands and arms...in addition to my face. |
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05-20-2013, 03:17 PM | #7 | ||
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I have had block done for over 25 plus years it help to keep the RSD at a level that i can deal with the pain still need medication i get 3 done on each side of my neck one day on the left then the next day on the right for 6 days striaght i only get numing medication only now other drugs 9-12 months i have to go back an start over.
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05-20-2013, 04:12 PM | #8 | ||
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I had my first SGB on Wednesday, 15 May. My CRPS is in my right arm and the injection was in the right side of my neck. Mine was administered under ultrasound and x-ray guidance with only a local anesthetic.
It was referred to as 'an injection' - singular - but it actually involved re-positioning the needle and injected anesthetic multiple times. I found it to be a bit much to go through without light sedation. Unfortunately, I did not find the SGB to be at all helpful. In fact, I had a nasty flare up on the Saturday following the block, though I'm not sure if there was a connection. It seems like the block does work for some people. I hope it works for you. |
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"Thanks for this!" says: | olecyn (05-20-2013) |
05-20-2013, 10:26 PM | #9 | |||
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WOW! ur insurance company is generous. Dr J ordered 6, they only approved 3 and I have bilateral TOS with the RSD. The surgery center had one approval and the doc's office had another. Ins co screwed up therefore Im screwed...not getting the 2nd or 3rd blocks as requested. They approved 3 as in 3 units. bilateral would be 2 units. INSANE
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Cyndy . color="Black">Slowly I turn, step by step, inch by inch *The 3 Stooges . |
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05-20-2013, 10:28 PM | #10 | |||
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CANNOT believe you had it done without general. B R A V E!
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Cyndy . color="Black">Slowly I turn, step by step, inch by inch *The 3 Stooges . |
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