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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Junior Member
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Hi.
I have had full body CRPS RSD for 23 days and 79 days since likely onset of RSD. My doctor at the moment Moskowitz Michael, MD suggested Stellate Ganglion Blocks and seemed very confident in them although Dr. Robert A. Savala, MD who did the injection said that if I didn't feel much or any change from the first injection he can't suggest more. However I am not sure of his experience with RSD CRPS. My reading on the subject seems to indicate that people who have it in one limb at my stage - 30% or 40% may have relief? I have pain at the injection site and it has traveled a little and gotten worse with the days. The injection was done last Wednesday and it is Sunday now. Should I get another injection Monday or skip it and head down to LA to see Joshua Philip Prager MD MS? I have an appointment Wednesday but maybe he could see me Monday..... |
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#2 | ||
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Magnate
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I suggest you consult with Dr. Carden in Marina Del Rey or research the pain clinic at USC, which Michael has highly recommended here on NT in the past.
Praeger will push for a spinal cord stimulator in all likelihood, and many of us that have gone to him for consults were unhappy with the experience... Just do some searches on patient reviews and you'll see what I mean. Dr. Carden offers out patient Ketamine, as well as other blocks and the SCS (but isn't pushy about it at all!) If you're willing to go further south there is also Dr. Sajben in La Jolla. |
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#3 | ||
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Junior Member
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I will travel anywhere. I am pretty sure I want fast 10 day Ketamine. Thank you for your response.
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#4 | ||
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Magnate
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Praeger does perform inpatient Ketamine, and outpatient as well. If you're willing to go out of pocket for outpatient he'll probably be interested... I don't trust him after my experience with him... I went to him seeking outpatient K and he made it sound as if he only offered inpatient--something I couldn't afford to go out of pocket for. He knew my insurance would cover the SCS, so that was what he pushed for. I was stunned when I was contacted by one of his patients telling me he performed her K infusions.
Dr. Leverone is in Torrance, but travels around the state, so he might come to you. http://neurotalk.psychcentral.com/sh...light=Ketamine |
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#5 | ||
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Junior Member
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I am sorry to hear that. A doctor shouldn't push something because it will be profitable for him.
However I am without insurance so everything is out of pocket anyway. It doesn't matter to me -I just want whatever knocks this devil off my back. I tell you without insurance everything is hellishly expensive. Maybe he pushed for the SCS because he thought that was what you could afford? [QUOTE=LIT LOVE;899717]Praeger does perform inpatient Ketamine, and outpatient as well. If you're willing to go out of pocket for outpatient he'll probably be interested... I don't trust him after my experience with him... I went to him seeking outpatient K and he made it sound as if he only offered inpatient--something I couldn't afford to go out of pocket for. He knew my insurance would cover the SCS, so that was what he pushed for. I was stunned when I was contacted by one of his patients telling me he performed her K infusions. Dr. Leverone is in Torrance, but travels around the state, so he might come to you. |
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#6 | ||
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Junior Member
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I emailed the doc at USC and he said I should see Stanford or UCSF. But as far as I know they don't do Ketamine. I was not impressed by the UCSF pain department, at least the doctor I saw. And I have an appointment at Stanford but it's for August 17.
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#7 | |||
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Member
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"Thanks for this!" says: | Djhasty (06-04-2013) |
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