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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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06-04-2013, 02:10 PM
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Hi, I was reading a CRPS RSD blog and they mentioned this research that aims to collate information about CRPS to further research into treatment.
I just wondered if anyone on this site is either participating in this, or knows about it. I want to be sure it is a legitimate study - it looks good, but I thought I'd check before signing up... https://crps.emergemd.com/Surveys/Ta...007&position=1 Any info gratefully received  thanks as usual!Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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06-04-2013, 03:58 PM
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Bram, that register window's logo looks like this organization.
http://www.rsds.org/organization.html If it is, it is legit. I'd check this site out for the info you seek. |
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06-04-2013, 04:10 PM
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Excellent, thank you
 I thought I'd read a site that had that logo! The main site talks about the research, so I think I'll sign up for it - anything that might help someone else with this thing, even it is in the future  Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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06-05-2013, 01:14 AM
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thank you for posting this! my partner has decided to sign up as well. she wishes she knew about this sooner!
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| "Thanks for this!" says: | Brambledog (06-05-2013) |
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06-05-2013, 01:27 AM
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It is a long term study they send me a link evvery year, trouble is the link has never worked
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| "Thanks for this!" says: | Djhasty (06-06-2013) |
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Does anyone take part in this research? Can I trust it?!
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