My RSD started in my left foot 4 1/2 years ago with a sprained ankle. It has slowly spread, I have it in my hips and even in my bladder. Over the last few days it feels as if it has spread to even more places. I am having spasms all over. And I am getting no relief. I am starting to feel crazy. The stabbing pain and fire and little pins and torture that I have felt in all the other places I am now feeling everywhere. Is RSD capable of spreading without you doing any damage to another part of your body? I don't want this to spread. I am only 38 I can't take much more of this. Please help me someone. I can't even get my doctors to listen to me I really need a lot of help.

I just found out I am systemic after only 2 1/2 years. I am only 38 also. Well, I will be 39 next month. I have it in my bladder and stomach/gi area. I also have it in all four extremities and eyes. Definitely not fun. I'm so sorry. I hope you can get relief!!

TK

TK, I am battling mutiple autoimmune diseases as well as RSD. I have severe chronic unexplained diarrhea.

Do you mind telling me what your symptoms are for rsd in your GI area?
thanks
kathie

My GI symptoms are nausea and flip flop between constipation and diarrhea. I also have lost a lot of weight. I weigh between 110-112 and I'm 5'7. I weighed 160 when this started. I also have really bad stomach pains and have to really eat blandly now. No hot stuff, spicy, greasy, or anything.

Familiar?

TK

TK, thanks, yes the symptoms are familiar. I have about 30 bouts of diarrhea a week, lots of intestinal pains and lost 50 pounds in 6 months. I have to watch everything I eat.

I also have constant tinnitis and balance issues/dizziness which I think is part of the systemic RSD too.

Sorry you are going through this too
kathie

Yes, cait 24, our symptoms are quite similar. They tested me for ms and had actually dxed me with it and then when I went to UT southwestern, I had no ankle reflexes, and ms usually causes hyper reflexivity. I also have cardiac issues, and the balance problems so bad I use either a walker or wheelchair. I hope you find something to help!! I haven't yet.

TK

It is possible, but you may also be having a bad flare that will subside again... I had a patch like this a few months ago and thought I was going mad with the damn thing, shooting electric shock type pains throughout my body, pain and soreness all over the place, GI pain with vomiting and diarrhoea (twice, a couple of weeks apart, for no reason, and the rest of my family didn't 'catch' it), also some spasms, twitching etc. it was horrible. I changed meds and watched my diet and stress levels, and it gradually eased off.

I think sometimes the CRPS just goes a bit crazy throughout your central nervous system, and affects everything for a while. Hopefully it doesn't mean it is permanent spread.

I do hope your situation improves really quickly, and you feel a little better soon. Must be a miserable time Try to stay calm where possible, eat healthily, and try to keep gently moving if you can. Distractions and small treats might help you feel a little more human for a while...and you definitely deserve something nice

Take care of yourself,

Bram.

Sorry to hear its whole body spread. I have only had CRPS for 4.5 months and it has spread to all 4 limbs in just 3 months. i didnt do anything to help the spread, it just happened. For me it started in my left hand. Im alsofeeling it in my lower back and upthe left of my back.