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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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06-09-2013, 06:44 PM | #11 | ||
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I got a sunburn when I graduated on May 11. I have bilateral rsd in both legs and arms and it has become systemic. Anyhow most of my body was covered by my cap and gown, I wear braces and I was wearing Mary Jane shoes. Anyway, I got sunburned. It's still on my right foot. My left foot finally faded. I have to wear super 100+ sunblock, stay in the shade, and traveling is tough. We are outdoorsy. I am in a wc at the moment, and I also get extremely cold. Kind of good considering how warm it is lol. I'm trying my best not to be a wet blanket for my family. It's so hard. Each day of fun usually takes a day or two if recuperation. I'm also having surgery Wednesday. I hope yalls trips go better!!have a good summer!
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06-09-2013, 11:16 PM | #12 | |||
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I personally find the heat is much better than cold. I live in Michigan where it gets quite cold sometimes and snows. This winter was miserable. I did make sure to have gloves or mittens ( which are easier) since it s in my hand and arm. Having cold or freezing air with the limb exposed goes misery for me, flares up the burning nerve pain and horrible aches.
A lot of my medication goes sun sensitivity. I didn't realize that until I got sunburned early on in the spring. Not sure if humidity is a factor in RSD, but I also have RA and high humidity hot days are also bad. A lot of good suggestions. I don't travel. Mostly because I have pets here at home to care for, but also I fear having a flare after getting some place.
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