Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 06-13-2013, 07:34 PM #1
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
8 yr Member
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
My Mood: Tremors
8 yr Member
Default Tremors

Yesterday I had my battery site cleaned out. I had a bad reaction to anesthesia where I could not stop shaking. Today, any time one of my kids or anyone touches my feet, they spasm. I took a muscle relaxer and it calmed it somewhat, but my original rsd site (right foot) is very painful and shaking uncontrollably. Anyway, I wondered if anyone had any experience like this?

TK
tkayewade is offline   Reply With QuoteReply With Quote

advertisement
Old 06-14-2013, 05:23 PM #2
Vrae's Avatar
Vrae Vrae is offline
Member
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Vrae Vrae is offline
Member
Vrae's Avatar
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Default

Quote:
Originally Posted by tkayewade View Post
Yesterday I had my battery site cleaned out. I had a bad reaction to anesthesia where I could not stop shaking. Today, any time one of my kids or anyone touches my feet, they spasm. I took a muscle relaxer and it calmed it somewhat, but my original rsd site (right foot) is very painful and shaking uncontrollably. Anyway, I wondered if anyone had any experience like this?

TK
Hi Tkaye, so sorry that things are not going well for you right now. Are you taking any anti-seizure medication? I am just thinking that it would help the tremors. I know if I don't take neurontin (gabapentin generic version) i tremor like crazy.
Vrae is offline   Reply With QuoteReply With Quote
Old 06-15-2013, 11:02 AM #3
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
8 yr Member
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
My Mood: Tremors
8 yr Member
Default

I am. I finally talked to the dr. about it last night and he said it was restless legs. I don't think it is but I took an extra 50 mg of my anti seizure med, and an extra muscle relaxer (he told me to lol; I'm not just self medicating). It's still doing it. It's weird. I wish I could show y'all. They twitch until I go to stand up then they shake like crazy.
tkayewade is offline   Reply With QuoteReply With Quote
Old 06-15-2013, 11:30 AM #4
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
8 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
My Mood: Tremors
8 yr Member
Default

Quote:
Originally Posted by tkayewade View Post
I am. I finally talked to the dr. about it last night and he said it was restless legs. I don't think it is but I took an extra 50 mg of my anti seizure med, and an extra muscle relaxer (he told me to lol; I'm not just self medicating). It's still doing it. It's weird. I wish I could show y'all. They twitch until I go to stand up then they shake like crazy.
Restless legs was what my weird leg symptoms were called for two years before my surgery that caused the CRPS. Always sounds like an excuse to me...

I'm sorry you're having such a rough time of it after your surgery TK, I hope you feel a bit better very soon. Must be so scary. My leg shakes sometimes when I stand up, and it feels odds, but nothing like what you're going through. Hang in there

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
Brambledog is offline   Reply With QuoteReply With Quote
Old 06-15-2013, 03:24 PM #5
KathyUK KathyUK is offline
Member
 
Join Date: Feb 2013
Posts: 151
8 yr Member
KathyUK KathyUK is offline
Member
 
Join Date: Feb 2013
Posts: 151
My Mood: Tremors
8 yr Member
Default

I'm not sure about the CRPS related after effects but I get the shivery-shakes with anaesthesia every time. I always put it down to shock (as my ops didn't go particularly routinely) but the anaesthetist of my last op told me it's very common (and that was before the CRPS diagnosis). Not pleasant though! x
KathyUK is offline   Reply With QuoteReply With Quote
Old 06-16-2013, 08:14 PM #6
tos8 tos8 is offline
Member
 
Join Date: Sep 2009
Posts: 286
10 yr Member
tos8 tos8 is offline
Member
 
Join Date: Sep 2009
Posts: 286
10 yr Member
Default

Do you have epilepsy? Anytime you have surgery, it can make your brain go hay wire and trigger szs. If i have a complex or simple partial, then I tremor bad in 1-2 limbs.


Quote:
Originally Posted by tkayewade View Post
I am. I finally talked to the dr. about it last night and he said it was restless legs. I don't think it is but I took an extra 50 mg of my anti seizure med, and an extra muscle relaxer (he told me to lol; I'm not just self medicating). It's still doing it. It's weird. I wish I could show y'all. They twitch until I go to stand up then they shake like crazy.
tos8 is offline   Reply With QuoteReply With Quote
Old 06-18-2013, 12:06 AM #7
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
8 yr Member
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
My Mood: Tremors
8 yr Member
Default

I don't have epilepsy but I did have a seizure in April. I am having an emg/ncv tomorrow. Sooooooo not looking forward to this. Heard these are brutal on rsd/crps. Still having awful tremors. I called doctor, and never heard back. Of course. No muscle relaxers tomorrow so I'm sure it will be awful. I'm starting to wonder if I'm crazy. Then yesterday my father in laws gf told me I could walk if I really wanted to. It's like they think I'm an attention whore, pardon my French. Seriously, so now my legs are jellier than usual and I'm just not sure what's up. It started after that battery surgery and never went back to normal. This disease throws me a curve ball everytime I think I've got it close to figured out or at least manageable. anyway, I don't know anymore. I want to scream!!!


tkayewade is offline   Reply With QuoteReply With Quote
Old 06-18-2013, 03:12 AM #8
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
8 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
My Mood: Tremors
8 yr Member
Default

Quote:
Originally Posted by tkayewade View Post
I don't have epilepsy but I did have a seizure in April. I am having an emg/ncv tomorrow. Sooooooo not looking forward to this. Heard these are brutal on rsd/crps. Still having awful tremors. I called doctor, and never heard back. Of course. No muscle relaxers tomorrow so I'm sure it will be awful. I'm starting to wonder if I'm crazy. Then yesterday my father in laws gf told me I could walk if I really wanted to. It's like they think I'm an attention whore, pardon my French. Seriously, so now my legs are jellier than usual and I'm just not sure what's up. It started after that battery surgery and never went back to normal. This disease throws me a curve ball everytime I think I've got it close to figured out or at least manageable. anyway, I don't know anymore. I want to scream!!!


Why oh why do some people have to be real jerks just when you don't need it? Ignore her, she clearly knows nothing about your situation and has no conception of the kind of pain that is possible - lucky her, but she should keep her unhelpful opinions to herself! If you need to let that scream of frustration out, do it to her. Might make you feel a teensy bit better to frighten the pants off her

It must be terrifying, I so hope everything goes well and you can get some answers from this. Try to stand up for yourself while you're in there - don't let the docs and nurses tell you something you know isn't true, or talk you into something you know is a bad idea. I know it can be very difficult to say no or stop to a so-called professional, I still struggle a bit myself but I'm getting better at it. Remember that you are the only one who really knows what's going on with your body...

This leg jellification probably is connected to the SCS wires, it might be that it takes your leg nerves a little while to settle down after the SCS stimulation. Hopefully it is a temporary (long enough though ) problem and something that will pass with time.

I'll be thinking of you! Good luck

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
Brambledog is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Tremors Horsegoer Parkinson's Disease 16 10-11-2012 02:09 PM
please help..what are these tremors miaxism Movement Disorders 0 07-13-2012 02:58 AM
Tremors Horsegoer Parkinson's Disease 1 06-26-2012 09:23 PM
Tremors... Russell Reflex Sympathetic Dystrophy (RSD and CRPS) 20 01-02-2012 05:14 PM
Tremors coletaterbug Multiple Sclerosis 1 06-11-2008 01:40 PM


All times are GMT -5. The time now is 07:46 PM.

Powered by vBulletin • Copyright ©2000 - 2021, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2021 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.