Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 06-17-2013, 04:12 PM #8
SloRian's Avatar
SloRian SloRian is offline
Member
 
Join Date: Apr 2013
Location: Phoenix, AZ
Posts: 212
10 yr Member
SloRian SloRian is offline
Member
SloRian's Avatar
 
Join Date: Apr 2013
Location: Phoenix, AZ
Posts: 212
10 yr Member
Default

Hi Jo*mar - I was just going to ask if TENS was the same thing as stim (which we had at PT) then I saw your post - I guess they're different. I'll ask my PT if he also has a TENS machine - good idea. My daughter's pain doc gave us something called a Hivamat, which helped a little bit, mainly in keeping flares away. I think that's something different, though, but it's also an electrical-type thing.


Hi Brambledog,
re Calmare - I have a little different understanding about it and wanted to share a few links, since it was mentioned. My understanding is that although it's similar to a TENS unit, it's substantially different; different enough that it has its own unique and separate U.S. patent : http://www.uspto.gov/web/patents/pat...-20130219.html. Also, it's different enough that one of the most prestigious health organizations in the U.S., the Mayo Clinic, has several official clinical trials underway; here's one : http://clinicaltrials.gov/ct2/show/N...rambler&rank=1 . These are both U.S. government websites; not Calmare sites. Anyway, whatever it is, it put my daughter into remission, and she didn't have to get a SCS! I'm still learning about and studying all sorts of different treatments (including TENS, which is why I started this thread), because I know we're talking remission, not cure, with RSD, but I do know that this treatment did wonders for my daughter.

Hi Az-Di,
My daughter was scheduling her SCS when we came across a mention of Calmare and tried it, so we know at least a little what you're feeling I wanted to pass on that the Calmare clinic in Mesa is now not charging for the first few treatments if it doesn't work for the patient (I live in Phoenix). Also, just another bit of info - a mom on another board I'm on said her daughther went into remission with H-Bot (Hyperbaric Oxygen Therapy) treatments - that's another non-invasive treatment that you might want to give a try before the SCS. Best of luck! and please let us know how things go.

Could you guys please share a little more how the TENS works? Where do you put the pads (?) in relation to what is hurting the most and/or the original injury site? How often can you use it? Thanks for sharing - it's so good to get people's experience with things!

Last edited by SloRian; 06-17-2013 at 04:37 PM.
SloRian is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Tens units and TOS Titus Thoracic Outlet Syndrome 5 08-26-2018 08:32 PM
Anesthesia Dolorosa MCS vs PNS Units? Audarah Trigeminal Neuralgia 1 08-02-2013 10:13 PM
Need feedback on TENS units and Interferential Stimulation units LARRY1135 Reflex Sympathetic Dystrophy (RSD and CRPS) 4 10-08-2012 10:02 AM
Do electric stim and TENs units help? AliM Reflex Sympathetic Dystrophy (RSD and CRPS) 8 07-15-2012 04:02 PM
TENS units today only 6-5-2012 Dejibo Multiple Sclerosis 6 06-08-2012 07:33 AM


All times are GMT -5. The time now is 09:56 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.