Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-24-2013, 05:05 PM #9
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ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
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Fingers crossed the Pain Program works for you!

I'm from the UK also and have recently attended London hospital to look into the 'COPE program'. I had an assessment like yours and was told that the course could help me. The only problem is that I live 3 and half hours away from London and would have to attend twice a week over a 6 week period so it would probably become really painful and tiring for me to manage, not to mention the financial implications.

Thankfully I went to the hospital yesterday and was told about a similar program that is run only 30 minutes away from my home which is great! I'm currently looking at getting a GP referral for it as it sounds really good... i'd meet others with chronic pain, be able to try acupuncture and nerve blocks if hospital staff thought they would work, try cognitive behavioural therapy etc. I'm just really surprised that no one has mentioned this program in the 6 years that I have had RSD until now!

I'll let you know how my program goes if I get the referral. I'm sure it cannot hurt and can only bring out positive things. I really struggle with pacing like you do and am currently off college because of it so hopefully it would really help with that.

Best of luck to you, glad you seem to be getting the help you need Let us know how you get on!
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