Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-18-2013, 04:01 PM #1
karma13 karma13 is offline
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Join Date: Jun 2013
Posts: 2
10 yr Member
karma13 karma13 is offline
New Member
 
Join Date: Jun 2013
Posts: 2
10 yr Member
Default Newbie Recently Diagnosed with RSD

Hey peeps out there. I hope you are having a tolerable pain day. I had surgery in Sept. 2012 I am experiencing massive nerve pain in my foot. Dr put me on gabapentin 600 mg 3 times a day. Lyrica too. neither of which do anything at all. I also had a tens machine and had been given lidocaine patches. Such a joke. Surgery was done by dr Steven Raiken at the Rothman Institute in Philadelphia. He released me and said I was healed. I went to a neurologist who had me have a emg. This came back normal and I proceeded to tell dr I was having nerve pain. He wanted to hear nothing. Basically said deal with it.The pain has increased and my scar has become white. Little red spots pop out and it is to the point now that I cannot even put on a shoe. I have been insisting to see another dr. Since this is a workmans comp case I am limited. I decided to go to the hospital for special surgery in NY where I saw a wonderful dr named Mark Drako. He said Rsd. He wanted me to see one of his anesthesiologist who does not take workmans comp. They gave me another name and he only takes ny workmans comp. I am trying to get to a dr that can control this pain. I have blood vessels popping out over the top of my ankle and occasionally I slur my words. I have massive sweating all over my body. I never feel well. Can someone help me with a dr to see in NJ or Pa. I know of this dr swartzman is he the only guy that can help??? I need to see someone soon as this is progressing and I feel horrible. Any advice would be great.
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