Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-18-2013, 11:31 PM #1
tkayewade tkayewade is offline
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tkayewade tkayewade is offline
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Default Emgs suck

Then they got mad because I couldn't move my foot and started shaking uncontrollably. Then during Ncs, they had to warm my feet. It was the most terrible experience ever. All for nothing. I have 3 drs that conclude rsd. It was to test for Als and mysanthia gravis. I was bawling by the end. They said I may have a lower back issue or spinal stenosis. I was like, you are the stupidest people ever. So 5 hours in a car, horrible test, and all it did was hurt me and tell me what I already knew. I'm calling tomorrow to get pt and aqua therapy when I can get my incision wet. I have been exercising my rsd hands and they have improved immensely. I fall 3-4 times a week, but I don't even care anymore. I'm tired of this useless bs. Either do something productive, or I'll do it myself. I am two years away from my doctorate lol. I have two scs's, meds and a wc. If I fall, well, they should have listened this last year when I've been telling them something is wrong. Sorry this is not my usual happy post but I am fed up with know it all neurologists with god complexes! This is my 3rd pawn off to another dr. Grrrrrrrr

TK
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Old 06-19-2013, 08:27 AM #2
Brambledog Brambledog is offline
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Grrrrrrrrrrrrrrrrrrrrrrrrr.....

This kind of idiotic blind cruel and crass stupidity is what gives the medical profession a bad name. All those years of learning, and very little of it to do with what is best for the patient. Just makes you despair.

Hang in there TK.

Bram
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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