Hello everyone,

I am a CRPS sufferer, a female 34 years of age, who has been dealing with this disease since July 2012. May 13 of this year I developed bladder problems. May 11 I worsened my condition by applying Rogaine to my scalp when my initiating injury was an occipital nerve injury/scalp irritation. My scalp got worse and my entire body reacted with a return of neuropathic deep aching pain and new symptoms as well such as circulatory changes that were more dramatic than before with all four limbs turning blue/red if away from the heart and increased intense spotty burning, previously it was diffuse over my upper body, and some burning over my legs and feet, which was new. That weekend after May 11 I took more Ketamine troches (lozenges) than normal and did so on an empty stomach while drinking barely anything. I had been using these lozenges (which are placed below the tongue) fairly frequently daily for about three months with some days when I increased my dose. That weekend up upped the dose to maybe 1000mg over a couple days. Then I started to have incontinence, some bladder pain, and frequency. The pain I would describe as aching with some burning. I had normal bladder capacity at that time. I thought it might be the Ketamine so I stopped using it and over the course of some weeks it seemed to be improving. Then a month after onset it worsened again, perhaps because I had a nutritional drink with potassium, or perhaps because at that time my bodywide aching worsened too due to stress. Then I made my CRPS arm worse so I turned to the troches again and my bladder got worse again, though I wasn't able to say confidently it was the troches. Now I have pain in the bladder 24/7 and it worsens with any kind of filling of urine and it's much worse than it was a month ago. I'm looking for any useful information on what may be causing my issues: is it CRPS spreading to my bladder because of the circulatory changes (even though I have not had other internal involvement to date) or is it the Ketamine? It's important for me to know if it is the Ketamine so that I can adjust my treatment... and treat my bladder. I would be interested to hear anyone describe their experience with bladder pain from CRPS: what it feels like, how it started, when it started etc. to gauge whether CRPS could be causing my problem. Thanks! Nicole

I have the exact same issues, a urologist diagnosed RSD in the bladder I saw her at cleveland clinic and says she see alot of it. I have the same issues you have but I also have the problem to where I cant go to the bathroom to the point they have to put in a catheter. Its been 5 years now dealing with it, I really dont have anything that helps accept that my bladder only gets worse when my pain is bad once the pain is under control whether I have to be in hospital or not it ussually helps my bladder. I am so sorry for what your going through I know how horribe it is. I dont think its the ketamine as I take the katemine also both the nassal spray and the lozanges and I had the bladder issues way before the ketamine.

http://www.ketaminebladdersyndrome.c...anagement.html

While it might be the CRPS, ketamine comes along with this risk and I wouldn't risk presuming it to be spread. I have been considering asking about ketamine for my pain but this thread confirms my concerns about it. I would think that any good doc prescribing ketamine would want to play it safe should symptoms such as these arise. My advice would be to make an urgent appointment with the prescribing doctor. I have read of a few docs blaming bladder symptoms on CRPS spread after ketamine treatment and this concerns me a lot. How on Earth do they know it's not the ketamine when it's such a common problem or are they covering their backs in fear of a legal claim? After all noone can prove it's not CRPS. I wonder if there's a way to prove whether it is the ketamine or not. First step is to discuss it with the doc and don't accept anything as fact without a solid explanation and/or investigation. I can Iimagine how much easier it would be to accept the idea of CRPS rather than ketamine bladder, I know if ketamine was helping my pain I wouldn't want to hear it might be harming me either. I genuinely hope that regardless of cause the problem gets better for you asap xxx

I have CRPS of the bladder. It spread there after an injury to my L5S1 and left foot 2nd metatarsal base fracture. After a couple surgeries and minimal physical therapy, I was left with CRPS. I did not know though. I had to wait the precursory amount of time and visit a certain number of doctors. Once the CRPS was diagnosed, my urologist said, oh yeah, all your bladder problems are connected to the neuro problems caused by the CRPS.

My symptoms include frequent infections, burning pain, fever, but I have hematurea (blood in the urine), pressure, inability to urinate/empty all the time. When i get an infection my Doctor calls in an antibiotic for me. In order to prevent the infections, I catheterize 3 times a day. Cathing is really not too bad. You can buy disposable catheters through an online pharmacy fairly inexpensively. Your nurse can describe how to insert the catheter, and in short time it becomes second nature.

I do NOT take ketamine yet. I am researching it as an option. I do have a lengthy list of medications that I am on. To list a few: fentynal patch, baclofen pump and oral, oxicodone, tizanidine, there is another 'T' I can't remember the name, cymbalta, lyrica, zipsor, and the list goes on...

Hope this helps. Open to more questions; just ask.
Hope you will be feeling better soon.

[QUOTE=getwellsoonerorlate;993749]Hello everyonfemale 34 years of age, who has been dealing with Bladder)
Hi anything that makes you really sleepy can cause incontinence . I was an RN
Were you ever pregnant sometimes a baby sits or stands on your bladder. I am with you on "what anothder RSD Problem " maybe
Gentle Hug Mark

Oh I love when the first post I see is exactly what im looking for.

Tonight i have had trouble peeing. Its like its there but the muscles wont let it out. and when it does it burns a little. I may have been a little dehydrated and then I drank alot of water to compensate. I have also been on 100mg of Tramadol every 6hrs because im in a horrible flare at the moment. This is the first time I have not been able to pee. its like I cant control it to work.

I also had my first round of Ketamine about a month ago and i did have bladder issues if I didnt drink enough water. I have a tendancy to overlook drinking and eating in the ketamine or pain killer hangover. I believe i had a urine infection as I do get them and treated it as i normally would. Once i got enough water in to me it was much better. I also ended up with thrush with it, hich was crappy. I guess we are putting alot of drugs into our system and we need to cleanse urinary tract to stay healthy, well thats how i have been seeing it.
I had not considered that there might be complications of ketamne or the possiblity to spread.

Thank you for this post.