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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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06-22-2013, 04:39 AM | #1 | ||
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Mamabear, my CRPS developed after a fusion of the front interphalangeal joint in my big toe.
We can't say with certainty that you have CRPS. But what you absolutely must do is get more opinions. This condition is widely misunderstood, even by most doctors. If it is CRPS, the faster you treat it as such, the better off you will be. You could try a pain management doctor (anesthesologists generally) or another podiatrist, but get multiple opinions. Don't be afraid to ask the doctor point blank how many patients they have treated with CRPS. It took me a half a dozen doctors before I finally received my diagnosis. Some of the doctors had heard of CRPS, but never treated it. One doctor had only seen 2 cases in 26 years. Please get more opinions and keep us up to date! |
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06-22-2013, 06:41 AM | #2 | ||
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Junior Member
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Sorry you have been in pain, but welcome. I saw two podiatrists and several docs at my family practice who missed my diagnosis before seeing an orthopedist who suspected RSD. He sent me to the pain doc. The pain doctor figured it out and started my treatment. He also had me see a vascular doc and a neurologist to rule out other problems. Then i switched pain docs because the first one wasn't considering all the treatment options. I guess what I am saying is that you definitely need to see someone who already has experience with RSD, and even after that you may need to look around to find someone you are comfortable with, if your insurance/health care system will allow you too. Don't give up or settle for someone who doesn't respect you.
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