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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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06-23-2013, 01:29 PM | #1 | |||
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Ditto, what DJhasty said is my experience as well. The Lyrica is easier on my stomach and I'm less tired however yes, slight weight gain
I don't take the max dose (3 per day) my Dr. would like but I can tolerate 1-2 |
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"Thanks for this!" says: | KathyWP (06-24-2013) |
06-24-2013, 10:17 PM | #2 | |||
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I am taking Lyrica now. My insurance company refused to pay for it and suggested I use Neurontin. I told my pcp that IU had tried Neurontin and I would not take it again. Her office told the insurance company I had taken it before and they had to argue for almost a week to get approval, which they finally did. I am starting off on 100mg of Lyrica for two weeks with and increase to 200mg. It's pretty low dose I think. Your comments are greatly appreciated.
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06-25-2013, 12:35 AM | #3 | ||
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06-25-2013, 04:30 AM | #4 | ||
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I've used both gabapentin and pregabalin and although I would try gabapentin again, I wouldn't touch pregabalin with a bargepole personally. Gabapentin worked a small amount on my nerve pain but the effects wore off after about 3 months. I successfullybhad a few goes on it with breaks once the effect declined. I never had any problems coming off it. The only side effect I had was slightly slurred speech which noone but me noticed. Pregabalin was pushed as a wonder drug that would work for longer with no side effects. I started it in the middle of a 6 month long flare and didn't get any good effect from it at all. However it stopped me being able to orgasm and messed with my sleep so badly I asked to come off it. It was during this time that I had some scary cognitive effects also although I cannot be sure it was that (although I do feel it was). Giving it up was hellish, I haven't met anyone who's doctor warned them of withdrawal. 6 weeks of brain zaps and major insomnia. Never ever again!
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"Thanks for this!" says: | Djhasty (06-26-2013) |
06-26-2013, 06:43 PM | #5 | ||
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In Remembrance
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I've been recently dx'd with Diabetes. Great fun! on top of the RSD/ TOS, disc, amongst other things. Anyway,
I been using / drinking Glucerna a lot lately. So I went to amazon.com, where you can order it by the case *I drink one a day, after my insuliin in the AM, so, 24 is OK. They'll start delivering in a week or so, and then, every month thereafter, unless I stay stop. I think that's cool. And, it's a lot less expensive, although, if you have a WRONG AID or supermarket near you, they usually print out coupons when you buy it. It's a good way to loose weight, if you're on Lyrica (I'm not). But, you might wanna give it a try. It's carbs and calories carbs equals calories so, give it a try! P asb |
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06-26-2013, 08:47 PM | #6 | ||
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I have many allergies and the day I went to my rheumatologist I ended up with laryngeal edema while waiting in his office. By the time I saw him, I could hardly speak. Thank goodness he had a handy needle of benedryl to inject. I had to quit lyrica that day and the next six weeks were not pleasant as I went through withdrawal. I forget how long I had been on it. The good part was losing over twenty pounds!
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"Thanks for this!" says: | KathyUK (06-27-2013) |
06-27-2013, 04:28 AM | #7 | ||
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06-28-2013, 11:30 PM | #8 | |||
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I was on it a few years back prior to my surgeries and RSD. I had horrible weight gain on it. I begged to get off of it for that reason alone.
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"Thanks for this!" says: | KathyWP (07-01-2013) |
06-26-2013, 08:49 PM | #9 | ||
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Gabapentin (neurontin) works well for me. There were initial side effects but they went away.
Lyrica actually seemed to be working even better but I got confused and the doc doesn't want me in a million miles of it. |
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