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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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06-23-2013, 02:39 AM
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I've had crps for just over 2 yrs. now. I know it's bad but it keeps getting worse. It surprises me when I have the "worst day yet" b/c each time this happens, I assume it's as bad as it will get. And then it gets worse. Higher pain, higher burning, more muscle cramping... When does this rotten disease peak? I really need this to level off somehow....
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06-23-2013, 05:43 AM
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Goodness knows
 I think we'd all like t know the answer to that one... I've had mine just under 2 years as well.I think it is the scariest part of CRPS - the terrible question of 'how bad will this get?'. Most days I don't want to think about it, so I just hope that I am one of the lucky ones. Mind you, I don't feel lucky now! Take care, and I hope the progression of your CRPS stops very soon. It is a frightening condition to have. Bram 
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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| "Thanks for this!" says: | reluctant@thetable (06-23-2013) |
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06-23-2013, 09:56 AM
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I am sorry you are having such bad days lately. I will say a prayer for you to get some relief. Hold in there.
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. GOD help me be faithful in the midst of my suffering. Alt1268 |
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| "Thanks for this!" says: | reluctant@thetable (06-23-2013) |
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06-23-2013, 11:01 AM
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Yeah, that is a tough question! I have had RSD/CRPS for just over 22 years now and wonder the same thing. I was lucky enough to be in remission for many years and when I came out of remission, it still stayed in just my face. Then in 2009, I injured my hand and the spread began and it is now throughout most of my body. Unfortunately mine is still progressing. But everyone is different.
I hope and pray that yours stops progressing and you get some relief! Nanc
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| "Thanks for this!" says: | reluctant@thetable (06-23-2013) |
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06-23-2013, 01:16 PM
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Sorry you are enduring this awful disease. I certainly didn't feel lucky but now I've seen how much worse it can be for some others on here. I've had it only 6 months in my left hand & wrist but does feel like it is trying to "spread" up my arm except the loss of function is still just in my hand & wrist.
The only thing I can think that may help prevent the spreading is 500 mg. Vitamin C every day and the nerve blocks about every 2 weeks. I have had 12 of those so far. Sure hope it gets better and not worse!
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| "Thanks for this!" says: | reluctant@thetable (06-23-2013) |
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06-23-2013, 02:32 PM
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Mine has continued to spread since having a hip replacement in 2003, very scary,my only advice is live in the moment bc that's all anyone has
Deb |
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| "Thanks for this!" says: | Brambledog (06-23-2013), reluctant@thetable (06-23-2013) |
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