Hey Kathy,

So sorry that you're struggling right now. It is a B**** to want to be out and about, try and give it a go, only to be laughed at for walking slow… hum, even if in jest, my God, where’s the humanity, or compassion? And I’m sorry, but how thoughtless to let the door fall back on you. People can be so rude and inconsiderate. They just simply have no idea Kathy how difficult the simplest of things can be for us at times. I applaud you for trying though.

I’m with Bram on the doc and meds. Makes me mad too. It’s just wrong on every level! The docs are so worried about covering their *** that they are failing to treat those who REALLY do need pain relief. I mean hellooo… Pain is in the damn name that they’ve given this condition! So yeah, you’re seeking drugs… for PAIN relief! Any drug or combination thereof that will take care of that will do. Geeze!!! And then there’s “only counseling will help” ONLY counseling? Well hell if that’s all it took I’m sure we’d all run out tomorrow and sign up! Counseling may help with some aspects but it’s just asinine to think that, that is the end all be all of what is needed now or in the future to help you with this disease.

I guess I’m the one ranting now. I tried to do some much needed cleaning around my house today, and it’s frustrating at best what little I accomplish before I feel DOA. Would love to be able to afford hired help for all the things I struggle to do, but that’s just not possible right now. I had a birthday party for my 11 y/o on Sunday evening and I spent the next day and a half in bed recovering. It’s wild how much I just slept and slept. Woke up sweating and feeling like wow, that was crazy amounts of sleep, and I’m behind on EVERYTHING. I am a little aggravated today (can you tell? ). I start to feel like I’m drowning in to do’s and I’m silently screaming..” I’m going under.. does anyone notice?” So when I read your post it didn’t take much for me to begin to rant at how ridiculous all this is at times.

Hang in there Kathy. Get some rest. Perhaps tomorrow will be better hon, or at least that is what I am hoping for too.