Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-25-2013, 04:47 AM #1
KathyUK KathyUK is offline
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Join Date: Feb 2013
Posts: 151
10 yr Member
KathyUK KathyUK is offline
Member
 
Join Date: Feb 2013
Posts: 151
10 yr Member
Default What is there to look forward to?

I've done it again but this time I was genuinely pacing and now I can't get up at all. Two hours in town with 3 good breaks. Just wanted to be normal. Went for coffee with my sister and her daughter (the ones that were fighting and are now back on track) but a couple of my sister's friends came and laughed at me for walking slow (don't think they meant to upset me) and one of them let go of a heavy door which slammed on my hip. I was feeling really faint all the time we were out and nearly fainted a couple of times. They didn't notice but my niece did and helped. Rang Baz and he took me home and I've been so sore since. On top of my legs and back flare pain my ribs also ache so much it hurts to breathe and I vomited from pain through the night. That's with the supposed flare tablets that I now have to take regularly just to get up on a good day.

I've been reflecting on how medically the move up north has been really bad for me. If I was still under my old GP and pain clinic there's no way they'd have left me like this. My new GP is nice and thoughtful but I've long since given up getting a medicine overhaul from him as he won't dare do it without the pain clinic backing and they're saying if I'm tolerant to one med then I'm tolerant to all and only counselling will help. I need the meds sorting because this pain clinic are forcing me into a wheelchair which I wouldn't need if I was managed better. I am so angry and tired. I hated living in Yorkshire but all I can think of is how much better I was supported down there by the medical profession.
Sorry for offloading. Just missing living.
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