Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 07-08-2013, 11:30 PM #5
anonymous730 anonymous730 is offline
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Join Date: Jun 2013
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10 yr Member
anonymous730 anonymous730 is offline
Junior Member
 
Join Date: Jun 2013
Posts: 13
10 yr Member
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It is eerily creepy and brings me comfort, (if that makes sense), reading your comments. Your comment about having a word in your mind and not being able to get it to your mouth-I just wrote that almost exactly in a reply to my first post on this forum-actually one you replied too that once again your words could come right out of my mouth they are exactly how I feel.

At first when I described my mind issues I would just say that I couldn't remember a word to describe what I'm saying and people would just blow it off love yea yea we all forget things. But it wasn't like that-it wasn't like, "what's that actors' name?" and you can't remember. Finally I was able to describe it the same way you said to a t-I can see it in my mind but can't actually say it. It is so weird!

Now I do wonder if it's from the RSD or the meds or a combo of both. I am on neurotin, which definitely messes with my brain, and also Percocet and Norco. I feel like the neurotin is the main culprit but maybe not? I feel much more comfortable thinking that it's the meds causing it and not the disease because then I feel as though I can be back to normal one day, by not taking the meds, because if its the RSD, then it could be forever????



Quote:
Originally Posted by Vrae View Post
I’ve had CRPS II for nearly 10 years. I can relate to you both. In the last year or so my short term memory is gone. I get lost in conversations with people. I search for words that I’m trying to say and spend time describing the word I can’t bring to my mouth. I can see in my mind’s eye the thing I’m trying to describe but can’t get the word out. This happens several times a day.

Also, several times a day I get to a room and I’m like “what the hell did I come in here for?” I know everyone has done that at one time or another, but for me it is several times daily. So much so that I get mad and start to talk to myself on my way so I won’t forget what I’m doing. I’ve had this happen while driving too.

I love to cook, or at least I use to. So I have tons of recipes in my head. I can no longer cook and talk to someone at the same time. Inevitably I will forget a step or an ingredient if I do not give this task my undivided attention.

Of all the things that CRPS brings, this really freaks me out. I’m not even sure of anything that can be done to improve on this problem.
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