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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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UK Sufferers Urgent

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Old 07-03-2013, 08:48 AM #1
Kevscar
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Default UK Sufferers Urgent
We have our debate in Parliment Tuesday 9th July 4.30PM
Please if it all possible be there contact your MP for tickets for Public Gallery
This time we must make a difference. Contact me on RSDFighter@hotmail.co.uk, if theres enough I will ask Iain to try and arrange a meeting
Kevin
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Old 07-03-2013, 09:03 AM #2
Brambledog Brambledog is offline
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Quote:
Originally Posted by Kevscar View Post
We have our debate in Parliment Tuesday 9th July 4.30PM
Please if it all possible be there contact your MP for tickets for Public Gallery
This time we must make a difference. Contact me on RSDFighter@hotmail.co.uk, if theres enough I will ask Iain to try and arrange a meeting
Kevin
Fantastic!!! I'm really disappointed I can't be there, I'm going to be away next week Not a lot of warning....

Let me know if there's anything I can do. The press release is coming on well, I'll get it to you ASAP

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 07-03-2013, 09:20 AM #3
Kevscar
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Thanks Need ottommorrow plaease so I can get it out friday and also adapt it for my MP's speech
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Old 07-03-2013, 10:07 AM #4
Kevscar
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Please contact your MP's informing them this is in Westminster Hall and ask them to attend and give support. I have now created an event on facebook for this please invite all the sufferers you know to attend
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Old 07-03-2013, 01:26 PM #5
KathyUK KathyUK is offline
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I would love to be there Kev but I can't travel that far (money as well as pain and appointments). I will be there with you in spirit! If there's anything I can do (MP is already sorted) let me know. xx
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Old 07-03-2013, 03:22 PM #6
Jimking Jimking is offline
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Good luck to all of you in your pursuit!!!
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Old 07-03-2013, 05:02 PM #7
Brambledog Brambledog is offline
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Originally Posted by Kevscar View Post
Thanks Need ottommorrow plaease so I can get it out friday and also adapt it for my MP's speech
I've just finished and sent it to you in a private message hope you like it!

I will be hoping for some good news on this. Well done everyone who helped, especially Kevscar. My MP is on board with this, I'm going to email him tomorrow and tell him about the date of the debate (I've been a bit busy today lol my fingers are sore from typing!).

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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