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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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07-12-2013, 11:52 AM | #11 | |||
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Well as far as night sweats my doc said what he knows works the best is the dibenzyline that I was on. (It did work) He said there may be a couple BP medications he could try, but due to no insurance I would not be able to afford them
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07-13-2013, 07:41 AM | #12 | |||
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O my goodness, I thought it was just me! lol I am the same way. It sucks. I didn't realize it could be related to CRPS even though it did start recently. But I wake up well you know 'nasty'. It is still cold here at night so I keep my window open and a fan in my room, but I have to keep a blanket over my legs (where the CRPS is). I try to keep the doors closed in the house during the day but living with like 11 people who don't really care about your symptoms makes it hard. If I can keep the doors closed during the day the house stays cooler and I have a better time at night with the sweats. Plus then I can go outside for little bits at a time into the sun if I have a place to cool off at. But if the doors and windows don't stay closed then it gets just as hot in here as it does outside and then I am screwed. lol I think that is what is so hard about this monster.... it is so confusing. The air-conditioning hurts sometimes but if it is too hot you are too uncomfortable and painful. That also make explaining it to others difficult. In my world they think I am just trying to be a B(*& and trying to start drama. I also have those scarfs that you get the gel in them wet and they turn cold. I got mine at Walmart. I am going to start using them. I always use them in the summer. I hope we all find some comfort!!
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