I an having horrible night sweats. When I was first dx my doctor put me on dibenzyline for the night sweats (and shocking pains). It did work for both, but I discovered it can cause cancer. So I stopped taking it. It us also $800 for a months supply. My insurance covered it, but I no longer have insurance.

For a while after stopping the dibenzyline it seemed the night sweats were gone. Well as with this wonderful RSD and symptoms coming and going... its back They started coming back a while ago. It us so frustrating, annoying and down right nasty! I wake up in the middle of the night at least once soaked in sweat and have to change everything. Then I usually wake up soaked again in the morning.

Has anyone found something that works to get rid of or minimize these?

I've got the same problem, and it got Far worse, after my second accident that cause a TBI. I just can't take a shower, no matter how cool, without staying wet for hours, literally.
I wear Patagonia "Capeline' t shirts which are incredible, and wick all moisture away.
But, I can go through three bath towels, dry my hair several times, use a cotton t shirt to dry off, then put on the capelins, drink ice water, and still can't dry off.
It's so frustrating!
Usually, I shower before I want to go out, and THAT seems to help, gettin' off my tail and doing something, and just forgetting about it. I can walk into a restaurant or store, with my hair still dripping, as if I'm drip drying from the shower...

I use anti persperants, Gold Bond, (and they have this new spray powder, that is wonderfully cold), but, I often still feel like my pores are wide open and bleeding sweat.
I don't like it.
I'm gonna start using ice packs on my head I think....

(I keep the chatanooga's in the freezer).....

I wish I had an answer, all I can do is understand....fbodgrl!


Pete



asb

Ugh...I know, right!?

Not only do I have the horrible night sweats when I sleep, I can't seem to regulate my temperature well at all. It is even worse with the warm weather and humidity. I'm having to run my air much more than usual, which I really can't afford, but the other option is to be in pain AND sweating!

Yep, humidity is more uncomfortable to me now than the cold used to be. I can't explain why, it just is. Low barometers are bears too! But, then I can still be down on a bright sunshiny day!

volcano (Jimmy Buffett)
I don't know!

pete



asb

fbodgrl and others,
As silly as this sounds ...
I tried the Frogg-Toggs-Chilly-Pad-Towel available through Amazon.com. Believe it or not they do get chilly and stay that way for a bit. When they warm up you just snap the towel and swish it through the air a few times. It cools right down again. As long as the towel is damp, it keeps working. I wrap the towel around my neck (I do NOT have CRPS in my neck.). It really does make a difference.

It doesn't stop the sweats but can make you more comfortable.
Hope this helps.

Just chiming in that I'm also a sufferer, not that I've found a solution.....I just keep on sweating.

You KNOW you are gross when your teenage boys tell you that you are a sweaty, stinky, mess......just sayin' !

I'm putting it on the" list" to talk to my doctor about at this months appointment.

Admittedly, I NEED a new primary doctor......that's a long story about me "getting too many ideas from the internet" and snarky references to my "opiod addiction", but......

I just get an eyeroll response when I discuss the copious night sweats and day sweating because I'm "probably menopausal and need to just deal with it like every other woman" I've gotten the same response since the sweating began 9 years ago when my pain issues started.....and my periods are still perfectly regular. My mom was 55 when she went through menopause. Her mom was in her 50's too.

I hope that you get a better response than the "just suck it up and deal with it" that I get. I've heard that some blood pressure meds, like Clonodine, can help with night sweats AND neuropathic pain, so they could work well for RSD'ers with night sweats as long as it doesn't lower your bp too much. As have high blood pressure, well controlled on other meds, it would sem like a reasonable thing to try to me, but my "know's better than me" doc doesn't agree.

ANYTHING that can make some of our symptoms more bearable is worth pursuing in my book. In addition to being more comfortable and sleeping through the night.......think of the decreased laundry that you wouldn't have to deal with !

Good luck !

And, I know that most of us just love the 'sting' when first getting in the shower...

p


asb

I have often wondered how much of the temp control issues and sweating while sleeping is RSD/CRPS and how much of it is Perimenopause. Same goes for some of my sleep issues too. I often wonder if my body’s inability to regulate temperature properly will only make what would have been “normal” (whatever that is) menopause even worse as I move towards that season of my life. I can hardly wait! (not)

I’m one of those who never really sweat before now. I would have to be out in some extremely hot weather or exercising profusely. I don’t sweat every night (yet) but have many times seemed to be sweating more than ever, be it at night or some other time of the day. I feel for those of you who deal with this aspect daily.

Oh the joys of being a women with CRPS!