Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-21-2013, 09:12 PM #1
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AZ-Di AZ-Di is offline
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Join Date: Mar 2013
Location: Arizona
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AZ-Di AZ-Di is offline
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Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
Help Seeking advice on SCS Trial

So, anyone who can "chime in" please do.
I'm set for trial on July 8th.
I do also have another follow up with Dr. & St. Judes Rep. before trial so that'll be my last chance for questions.
I've been reading about the acronym no "blast" but now I'm wondering on the details.
For example: Bending - brushing your teeth over bathroom sink? Lifting: what limits?
Stretching - can you reach into say a regular type washer &
dryer?
Twisting - How do you make sure you don't do that in your
sleep and how do you get out of bed.
Getting and out of vehicle? How about having your back against a seat or chair?
Mine will be placed in lower back and then go all the way up to shoulder area as my CRPS/RSD in in my left hand and arm.
Can you wrap the site in cling wrap and tape it up and quickly "shower"?
I'm really scared to do this and I've read a lot of everyone else's stories here.

Along a different thread I'm also dreading feeling like a "burden".
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