[Vrae]

I have been having tremors like crazy lately (movement disorder). My doc increased my gabapentin to the max dose a couple of months ago. That really helped to calm everything down. Now here I am a couple of months down the road and it’s not working as well as it did upon the increased dose, and bummer, I’m at the max level of 1200mg 3x’s /day, or at least the doc said it was the max dose when I mentioned this to him.

Over the last couple of weeks I’m having tons of spasms and tremors, inside and out. Meaning that I’ve had spasms in my lower abdomen (internal organs), as well as all of my extremities too. I have also had a few instances of not being able to swallow properly and have had back to back choking episodes.

It got so out of hand today that it was affecting my tongue too (not the first time this has happened). My tongue starts to feel fat and my speech slurred and words hard to form. Let me be clear, I’m not on any other med than gabapentin when this was happening. I take other daily meds, but I take them at bedtime. After another dose of gaba and some much needed rest, I can speak normally again and my tongue seems back to normal.

The spasms have been daily and the way my muscles will contract is out of hand. I mean the contraction grabs a hold and I start an aggressive action of trying to release it by rubbing, whether it be my foot, or calf or thigh, etc. I also have colorful language while this is happening. It’s really, really painful!

As I type this I am having a twitch in my eyebrow area that is maddening.

Anywho, so I am concerned that I am at max dose of Gabapentin, which by the way is causing much grief with my stomach at this level . Baclofen was an awful experience for me. So what’s left to try? I do take a daily dose of Soma at night. Yes, I am aware of the risks of this drug and take it anyway because it seems to help, but my symptoms are getting worse. My doc wants me to see a speech therapist. Now call me blonde but I don’t get how that will help with my tongue when it has that fat feeling randomly. And the choking has the same randomness as well. If someone can set me straight, perhaps I will be more eager to spend money on this.

Thanks in advance for any info or advice!