NeuroTalk Support Groups - Having a really hard time!

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NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Having a really hard time! (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/19175-hard-time.html)

Hippyhair

05-10-2007 06:25 AM

Seizures? Passing out?

I am already epileptic. Recently the seizures have been totally out of whack. It could be from one med., citalopram, or that the RSD is involved.
Get to a neurologist!
In the early stages of RSD I did fall down, not a seizure, but that has stopped.
An EEG will give some answers! And take care! Think of the time of day it happens. How you are feeling right before you "fall". Take notes to take to the neurologist. Check out the meds you are on with your pharmasist to see if they can cause seizures.
Hope this helps!

sue k

05-10-2007 03:36 PM

HI,

Iam so sorry for the problems you are having. I've passed 0ut once that I remember. They said it was from migraines. But now Iam finding out from friends and family that several times I was acting very strange. There are days I have completly lost. After going off the methadone, things got better. You should really tell your Doc about this. Find out what is going on.
God Bless,
Sue

InHisHands

05-10-2007 04:23 PM

Thanks for all the prayers and hugs. And the advice and experiences!

I am going to update you all on my situation later on. I appreciate the support! :grouphug:

InHisHands

05-16-2007 08:35 PM

Guess what?!!!!!!!!!!

I am finally going to get nerve blocks!! (after being dx with RSD since 11/06 and not having any). We are starting with my legs, since they are the worst.

I hope and pray they will work... at least short term!

More later- not doing real well, and keep passing out from the pain.

Jomar

05-16-2007 09:36 PM

:grouphug: Best of Luck with the blocks!!:grouphug:

buckwheat

05-16-2007 09:38 PM

I ditto the above post. Love, Roz :grouphug:

dorrie

05-16-2007 10:28 PM

Vanessa...You are in my thoughts and prayers...Good Luck sweetie!!:hug:

mollymcn

05-16-2007 11:27 PM

Big hugs (the non-hurty kind). You are good and you are brave to try something new to fight for your legs. It is so hard to know what to choose when the choices are so not-great. When will you get your first blocks, do you have an appointment yet? and for the pasting out ... everything other cause has now been ruled out, right? (Vitamin B-12, blood pressure, etc etc). Pain does such awful sneaky things to our brains and bodies...
xxxxxxxxxxxxxxxxxx oooooooooooooooooo

theoneRogue420

05-17-2007 12:45 AM

InHisHands, good luck! I hope the blocks do the trick.

Hippyhair and Mollymcn are right on target... talk to your Dr., ask about an EEG. I had never had a seizure in my life till late in my rsd progression. The neurologist says there is a very good chance that the rsd is causing the epilepsy. :eek: I have several types of seizures, not all of which are the full-blown type. Are you already on an anti-convulsant for the rsd? That might be keeping the worst of it at bay, making it harder to diagnose. You might want to read the epilepsy forum here at NeuroTalk, I have found much helpful data there.

tayla4me

05-17-2007 06:16 AM

:(

Hope you are starting to improve. I have been away from the site for awhile and am just catching up.
I used to faint from my pain but the meds I was on were also causing low blood pressure which didn't help.
Are you taking an anti-epileptic drug, it may help the spasms and jerkyness, I suffer terribly from them but do get some help from Clonazepam.
Thinking of you
Tayla:hug:

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